When my Dissociation makes me feel lost

It has been a long time since I have written anything. I have been doing some better, but struggling more than ever with feeling lost.

There are moments when I forget about my Dissociative Disorder, and then I am talking to a good friend about his son and I can’t remember his son’s name.

These moments of amnesia make me afraid to pose as normal to the world. I have thought about trying to go back to work, then I feel this inner flooding of anxiety.

I ask inside to my other parts what we are so afraid of about going back to work. Apparently, they just don’t think we can do it.

It is possibly true. I know I may seem like I am ok sometimes, but then I look back on my day and realize I only accomplished 1-2 things. On an intense day, I might have struggled to get a 3rd thing done.

I am not sure why I can’t get more done in a day, except for this damn amnesia and feeling confused and lost so much.

I have been trying my best to be present for my children as they both have issues going on and need me. Some moments I am good about that, other days I feel inner parts distance themselves from the children and contemplate suicide.

The therapy is a struggle lately. My child parts are so hurt and don’t understand why we are seeing the T less often. Our insurance would rather pay for hospitalization than outpatient care. Brilliant business people.

The therapist wants us to trust her, but the younger parts feel like she doesn’t care about us. The T struggles with this because she says she doesn’t understand what she can do to show parts she cares about them.

Then, the parts reveal that because she is not abusing us, she doesn’t care about us.

She says she is never going to abuse us, so she is never going to care about us?

Then there are older parts who say we should just stop going to therapy. This doesn’t go far because the Little’s surface and put us in a Little hurt state of mind.

Anyway, like I said, I am feeling lost. Don’t know what to do about much. Contemplating giving up my career and going to work for a low paying job or no job at all. Can’t seem to make any decision about that or anything else.

Lost. That is me.

The loneliness of my DID

For the past week, I have been struggling deeply with my Dissociative Identity Disorder (DID).

I have been rage-fully suicidal, and even a few moments of being homicidal. I don’t understand why I am having all these feelings and thoughts.

I don’t even understand why I have been making violent suicide plans that involve punishing someone who hurt me badly.

This is not uncommon for me, to not really understand what is happening within myself, but the degree of anger and extreme suicidality is unusual.

My brain goes from crazy, enraged to numb and dumb. It makes me feel less than human like this.

I have only one person who I can truly discuss all this with, my therapist. Yet, for reasons unknown to me, I decided to fire her this past week.

I went to session and asked her a question about how she knew a fact about my ex-therapist’s office building she mentioned in our last session, and I lost my mind with her attempt at an answer and I filled with mistrust and feeling betrayed, whether justified or not.

I switched through a Rolodex of parts who were losing their minds inside and outside my head. Suddenly, my whole system of parts seemed like they no longer trusted the therapist. This was unexpected for me, the one who tries to manage all of this.

In fact, I quickly found myself banished to a back seat in my own head. Instead, parts who are suicidal and want to punish the ex-therapist announced a violent plan to kill ourselves that they are convinced would wreck her life the way she did ours.

This feels satisfactory to them, but I try to remind them what it would do to my kids, and her kid. My system never wants to hurt kids.

I get it, she is such a fucking narcissist who has shown me no remorse for what she did to me or us. I get this rage. It is so similar to my own mother.

But, I don’t want to end my life to destroy hers. I don’t even want to destroy her perfect little life, but I do wish she would talk to me and tell me how sorry she is for what she did to me. We all know a narcissist isn’t going to do that.

I have been hiding my craziness from my spouse, children, and best friend. People would freak out if they knew what was going through my head.

Everyone wants to put me in a psych ward, and frankly, I am not interested in getting drugged and stuck in one of those places. I would rather risk it on the outside.

I have no one to talk to about this except a small group of people I know through the internet. Even some of them talked about me going into the hospital ☹️.

It’s lonely, trying to hide this madness, trying to keep myself safe, trying to contain the chaotic insanity going on inside when talking to my spouse or children.

Sleep is a good hiding tool, but too much and the spouse figures out something is wrong again.

I have found that really those who go through this similar experience of DID are the only ones who can really understand it. And even so, sometimes it is impossible to get adequate words out to describe what is happening inside.

I want help when I am at this dangerous level of distress, but I haven’t found anything helpful. Hospitals don’t help. They often times do more harm.

I wish my therapist could help me in this situation, but she is merely another human with her own life and trying to help people the best she can.

So, the answer continues to be loneliness, though I am truly thankful for my cyber friends.

The Meadows Trauma Program—No to DID


From the Meadows website:

“For over 35 years, The Meadows trauma treatment program has been helping trauma victims heal and learn the skills necessary to cope with the devastating, and often hidden, effects of trauma. The trauma treatment program at The Meadows was specifically designed for trauma survivors by Pia Mellody and a team of world renowned experts including Dr. Peter Levine, John Bradshaw, Dr. Shelley Uram, Dr. Jerry Boriskin, Dr. Bessel van der Kolk and Dr. Claudia Black.”

The world-renowned Meadow’s trauma recovery program is only meant for people with certain levels of trauma. 

You can’t have too little, or you better be extremely wealthy ($60k) because your insurance program is not going to pay for it. You can’t have too much because then they feel you are too high of a risk for suicide or some other lawsuit.

I put up a good fight arguing that my DID diagnosis should not exclude me from the option of getting treatment at the Meadows. Unfortunately, it appears the Meadows is basing their decision off the Hollywood version of DID instead of examining whether a person might be appropriate for their program regardless of a DID diagnosis.

I find it very fascinating that these treatment centers are more comfortable with people who are actively suicidal than they are a stable person with DID who is not suicidal. My therapist likes to say that these places just don’t understand the diagnosis, and I am beginning to agree that they are getting their information from Hollywood instead of real life.

I am the first to say that not everyone with DID is in a place to do residential treatment, but there are also lots of people with DID who are in a place to do it and be safe. I consider myself the latter, so this has been a personal frustration for me.

I guess what really hurts me with the Meadows (I have been rejected by many other treatment centers based on my diagnosis) is that some very important people in the trauma field stick their name on the Meadows as consultants for their trauma program.

I just don’t see how these people in good conscience can sleep at night by turning away those of us who have been the most harmed by child abuse, meaning those of us with DID.

It is absurd how afraid people in the trauma mental health field are of those of us with DID.

I have made it my mission to try to educate and change the current lack of resources available to those of us with DID.

The clinical director at the Meadows agreed with me that there are not intensive treatment programs for those of us with DID, but only a handful of hospitals that are in place for stabilization.

I don’t need need stabilization. I need treatment. I deserve treatment. This is not my fault, and it is not ok that the founding members of the trauma movement are not working to provide more services for those of us with DID.

As much as Sheppard Pratt and University Behavioral Health are doing to take people in when they are unstable, those programs are not going to help anyone heal.

Those of us with DID deserve treatment programs where the very best and latest treatment modalities are available to support our recovery.

Recovery is possible, but not for most people who don’t have access to the latest treatments offered at these trauma treatment programs.

For the past year I have been having the hard conversations with those who reject us because of a stupid diagnosis. I do not accept that we don’t deserve help because our trauma was so severe that we developed DID.

In my opinion, don’t you dare call yourself a trauma therapist and then say you don’t treat DID, and equally, don’t consider yourself a world – renowned trauma treatment program if you won’t help those with DID.

If you have DID, please confront these people when you encounter them. We must assert our rights to get better, and let them know that we are severely injured human beings who deserve to be at the front of the line when it comes to getting help.

Then they can sleep at night knowing they are helping all of us who have suffered severe trauma.

The indifferent therapist who ruined me


There is a woman who lives just about a mile from my house who I have so far allowed to ruin my life.
She is not a lover, or anything so exciting as that. She was my first therapist after my 13 year hiatus from the mental health community.

From the first moment I spoke to her on the phone about a possible appointment with her, she touched my mommy transference button. Not because she was so nice, but because she was indifferent as to whether I came for help or not.

I came in to meet this woman for a ridiculous fee, and she told me I wouldn’t succeed with the first therapist I picked because my DID was too much of a problem. When we talked about me possibly seeing her, she was again indifferent. My mommy transference was triggered again.

I ended up coming to see this woman as my therapist, and it was the craziest, most emotionally dysregulating relationship in my adult life. She saw her indifference as empowering me. It destroyed me instead.

I had always been a person who didn’t need anyone. I can go to the movies or dinner alone and it doesn’t bother me in the slightest. I love being alone. But she was different.

Her indifference throughout our relationship of whether I was dead or alive propelled me so far into transference land that I couldn’t let go. I needed to do this “mom do-over” correctly, so that she would care about me, or at the very least care whether I lived or died.

As each day passed on, our relationship became more destabilizing to the both of us, though she probably wouldn’t admit that.

She has a need to be the perfect, expert DID therapist in town, so she would never want anyone to think she was less than perfect. Neat, orderly, perfect, and sometimes cold as ice.

I was still obsessed with making this relationship work, even though I started going to an anonymous bar after every therapy appointment with her. I felt suicidal most days over feelings I had toward her, or perceived feelings she had toward me.

I became obsessed with her abandoning me. Sometimes paralyzed by it. We spent endless hours talking about the subject, so I became very clear about her rules of when she would abandon me. She said she would have to abandon me if I ever tried to kill myself, which is kind of a ridiculous rule to have for someone who is DID, but I agreed to it.  She promised that she would never abruptly abandon me, and that if it ever needed to happen, I would know far in advance and it would be a slow, gradual transition to a new therapist.

My protector parts had much more insight than me and my younger parts because we were so attached to her. They listened to exactly what she revealed about herself as her weaknesses, and acted on them.

We were suicidal and we told her we needed to go inpatient. She told us she would help, and she didn’t. The next session we told her again, and begged her to call the admissions coordinator, and she didn’t. This was interpreted by us that she wanted us to kill herself, and we couldn’t bare the callousness of her not caring. What other rational explanation could there be.

That evening when we had given up all hope that she was going to help us, we went to a bar and had two beers. We spoke to her on the phone and refused to tell her where we were because we didn’t want the police to show up in our small town. I offered to walk home since I wasn’t far from it and live in a fairly safe area. She wouldn’t allow it. I ended up driving because I was really ok to do so, and couldn’t leave my car in the parking lot.

She had told us before that she had no tolerance for people who were drinking, and people who were seriously suicidal. The therapist became triggered.

I flew out that night on my own, from my own decision, to a treatment center for people with DID, and spoke with her the next morning. I asked her if she was going to leave me over this, and she promised she wasn’t and that “it is nowhere on my radar screen.”

After entering the treatment center and more and more time was going by and I hadn’t heard from her, I knew she had lied. I knew she wanted out. She didn’t have the courage to tell me this herself. She finally came up with this long list of nonsense that were new requirements to continue treatment with her. She knew my protectors would never go for the list as it was just too ridiculous.

At first my protectors rightfully said no thank you. Then I panicked in a huge way and begged her to stay, and agreed to all her conditions, and she wouldn’t allow it. She told me I needed to listen to my protectors. She gave us three referrals and that was it. Only one of the referrals agreed to see me when I got back into to town, but after she spoke with this previous therapist, she literally backed out of agreeing to see me.

I must have interviewed 20 therapists who said they treated DID. At least half were nut jobs, and the other half were either not good fits or nice people who were extremely inexperienced.

I received in the mail a certified letter from the therapist containing all the SuperBills from the year before that I had requested the year before, and the 3 useless referrals. In other words, she was trying to cover her ass.

I called her and wrote her and begged her to either talk to me or help me find a therapist. She never talked to me again. She left me for dead, which is actually meant to be literal. She is no different than my biological mom.

In my entire life, I never begged someone to act like a human being and just help me by doing something as simple as calling me so I could understand what happened.

That was 17 months ago. And even though I did find a good therapist, and realized my relationship with the first was extremely bad for me for various reasons (primarily because we were triggering each other nonstop, though she would never admit that), I haven’t been able to leave my bed other than to go to an appointment for 17 months now, and there doesn’t seem to be any end in sight. I have also developed several health problems over this 17 months.

Today, we do see her across a parking lot from time to time. Depending on the day, sometimes I think of running her down, other days I realize she is just another imperfect human being and care nothing about her. My little ones inside still want her to be their mother, even though we try to explain why she wouldn’t be a good mother for us.

Some days we still cry over the loss of her, and more often, for what she did to us. In the end, we didn’t mean anything to her, and she didn’t care if we lived or died as long as she was clear of any potential law suits. She truly had become my mother in many ways, but when you are mental health provider you have all the power to ruin someone by simply saying they are borderline and extremely difficult. Doesn’t matter if that has any basis in reality. It enables her to protect her do-gooder image, no matter if it destroys me.

I don’t know when, if ever, we will be functional enough to get out of bed and live our lives again.

We know we shouldn’t let this severely less than perfect person wreck our lives, but we truly feel ruined and have no insight on how to move out of this condition. It is so hard to forgive someone who betrays your trust on this level, and then makes it your fault. Narcissism.

I am all for therapists taking care of themselves, and if she needed out, she needed to get out. But, this should have been balanced with my welfare, my chance at survival, and maybe an explanation for what was happening. I am actually a fairly reasonable and forgiving person to those who know me. I don’t know that I will ever forgive her, not that she cares.

So, this has left me bedridden and missing out on my life. I am sad about this tonight, but I haven’t been able to figure out what to do to make it any better. I guess my horrible luck in life continues on.

There are days when I want to kill her, but those are rare and I choose to think of killing myself instead. Either way, without a doubt, she has killed an important part of me already with no remorse. Yet, another very difficult fact to accept into my life.

It is scary to think sometimes the helpers are sicker than the patients. Ah, but to admit so would be bad for the profession, so no one will be admitting that here. The helper is always right, no matter how much baggage she secretly carries.

Please pray that one day I will find my way out of what has become a very imperfect life for me. I deeply appreciate the stranger therapists, who were in the business for the right reason, and tried their best to help me because they cared about human life.