Abused again: Trying not to give up on myself

I woke today with a busy schedule ahead of me. I have been dealing with a lot lately, particularly a very chronically sick child. It was also the day I was going to slip in taking care of myself by getting an x-ray of my hip that I injured 2 months ago and have been dealing with chronic pain ever since.

I wasn’t seeing my normal orthopedic doctor because I needed to get in quickly as I don’t have many self care openings in my schedule these days. In retrospect, I should have caught the red flag of this particular doctor having multiple openings for a next day appointment at one of the top orthopedic practices in town.

Nope. I jumped out of bed to get to the appointment early in the hopes they would take me early so I wouldn’t miss my therapy appointment afterward.

Of course, I sat in the waiting room past my appointment time before the front desk even called me up to fill out additional paperwork. So much for arriving 20 minutes early.

You know those doctors always have more important schedules than the people, so let’s make sure that is reinforced.

As I am finally walking back to meet the doctor, who incidentally wasn’t seeing any patients but me, I noticed in the paperwork they handed me to give the doctor that it has all the prescriptions listed that I have filled at my local drug store. On it, a long list of many types of psychiatric medications.

Great. I am going to get labeled a psych patient and treated poorly, as I have been through that scenario more than a few times.

The doctor pops in and spends 95% of the appointment time talking about himself, his health, the death of his brother, his age, how he doesn’t suntan anymore, what he watched on tv last night, his experience with his last colonoscopy, the cost of medications he takes, and how he treats his his rosacea.

I am feeling really grounded, but taken aback by this strange doctor showing no interest in me, and the clock ticking in my head for my next appointment.

I do my best several times to bring up the pain I am feeling on my side.

Finally, the doctor comes toward me to examine me. He starts touching me and says over and over as he moves his hands around my body “does this hurt?” When he found where it hurt he pushed in really hard and I almost jumped off the table. He says he knew that was where the pain was coming from. It was high up on my left side.

I continue to feel grounded but focused on trying to accurately answer this man’s questions about my pain as he touches me. I am so focused on trying to accurately answer him I don’t realize he is now touching me in my vaginal area and talking about bones in the pelvic area—that have nothing to do with why I am there.

I hear a couple of voices in my head calling me stupid because I don’t realize this man is touching my vaginal area for no reason and talking about how my pelvis bones touch each other.

In a slowed reaction, I realize the voices are right and this man is touching me inappropriately. And I do nothing about it.

I freeze.

I don’t stop him or tell him to stop.

It’s as if it is not happening to me, but I can hear this man’s words and feel his touch that it is happening.

Fortunately, the man seemed spooked for some reason and jumped up to go get an anatomical dummy to show me the bones in the pelvic area, which again had nothing to do with why I was there.

I couldn’t hear him so well any more as my internal world was starting to come undone.

I knew I had to get to my car before I acknowledged to myself what had just happened, so as soon as he asked me if I had any other issues I wanted to discuss, I said “nope” and raced out of there.

I tried my best to drive to my therapist’s office without coming completely undone. I made it there and then felt dead.

I let it happen again. My therapist probably doesn’t even believe me. How can these things keep happening to me?

I lost hours of time in my therapist’s parking lot as I switched between parts trying to process what had happened. I fought tooth and nail to not let other parts cut open my throat. The rage inside me is at its worst when this idea is present.

I am extremely angry at myself this happened to me today as I was just speaking about how this happened to me with another doctor some years ago, and I thought I had grown so it wouldn’t happen again.

My therapist asked me if I wanted to file a complaint. I didn’t. I know full well that my list of psych meds alone discredits anything I might have to say happened to me, which is probably why he targeted me to begin with.

I told 3 people today this happened to me. That is progress, but still I am awash in confusion how I keep letting this happen to me. Where are those strong parts of me when this happens?

Will it ever stop?

Drifting

Drifting toward health.

Drifting toward death.

It doesn’t seem like this should be so confusing, but it is.

Some days ago, a little girl, maybe 4 or 5, stood in my childhood bedroom watching in freeze mind as my mother threw out her toys into the big green dumpster my mother had wheeled into the room.

This child did not understand, as any reasonable person wouldn’t, why her mother insisted on stripping every bit of humanity out of her.

She caused no trouble in the house. She did everything her mother or brothers told her to do. She had sex with whoever wanted it. She tried not to breathe as she was afraid it would upset them. Her existence was so minimal.

Still, with trying to do everything right, her mother hated her with such sadistic pleasure.

Her mother had made sure to strip her of everything.

Decency. Humanity. Love. Free thought. All gone.

She was forced to live in a room that only had a bed and a piece of office furniture. There could be no signs of a human child living there. Only nothingness, so she would always know she was nothing and nobody.

The little girl is stuck in this place, long past trying to understand her life.

Confusion, obedience, and an ounce of pain belonged to her.

I watched her for days. She was stuck there. I was stuck watching her. I had no explanation to give her. Yes, it was all vaguely familiar to me, but I wanted to keep it “not me” because that looks like such a painful, awful existence. Who would want that?

Feelings of suicide had been circling us as a system. I was not in as much control as I usually am, partly because watching this little girl made me want to die.

So I let the others inside me deprive the body of oxygen until I reached an altered state of consciousness. Here, I could go to the little girl in the bedroom.

Like I would do with my own wounded outside children, I reached down and picked her up and held her. She had never been held before, but she did not resist me and gave in to trusting me and let me carry her away.

I held her tightly against me, with her legs wrapped around me, and I could feel her pain and confusion. It is stuck in my heart.

I wanted to promise her that she would never be hurt again, but I knew I couldn’t do that in this very imperfect world.

She had endured more pain and suffering than a nation of people.

She would experience it no more.

I delivered her to the angels in heaven as I knew of no other place that promises the end of suffering. I told her she would be safe there, and the angels would love her and take care of her.

After I delivered her, I gasped for breath to get some oxygen in my earthly body. I was barely there. I was barely making it out alive.

I struggle to care about the damage done to my brain, or my almost lost life. It seems unimportant in the scheme of things.

I look to my childhood bedroom everyday since then, and it is empty. She is gone. She is free from the cruelty dealt to her.

I am relieved to have set her free. And uncertain as to what this means for me.

Namaste

How severe neglect and abuse affect relationships

My parents did not love me. They did not hold me or care for me in even the most basic ways as a baby/toddler/child/adult.

As an adult, I know how this has affected me. I struggle to connect lovingly with other people in relationships. I don’t like to be touched. I struggle to feel anything other than numb.

There are people in my life who say they love me and care for me deeply; yet, I feel empty and nothingness and awkward to their loving gestures.

Interestingly, for me, I can feel love when it comes to my children. I genuinely love them, and I feel their love for me. I am not sure why it is so different when it comes to them.

When people other than my children say they love me, I cringe as if a dagger just went through me. I know I am supposed to give a loving reply back, but I can’t, and retreat into a state of internal awkwardness.

In case you are wondering, I am married. I don’t know why my spouse puts up with my difficulties around love, touch, sex, and oftentimes being aloof.

Sometimes, the fact that I have Dissociative Identity Disorder (DID) comes in handy as there are other self states within me who do not struggle with the attachment damage from my childhood.

I don’t always control which part of me is out, and thus I fluctuate in the level of connectedness I have with others. This can be confusing to people because they don’t know about the DID (or don’t understand in my spouse’s case).

There are times when I am home with the family and I find myself very disconnected from them. My spouse will ask me what is wrong, and there isn’t anything wrong, but a self state that has more severe problems with attachment is usually present.

Other self states may go overboard with love and intimacy with other people. These self states tend to like to drink and be social, which of course is not the best combination.

My adult self-states are mostly similar enough that even the people who know I have DID have trouble distinguishing between them. But there are subtle differences if one is paying attention. However, very few people know about the DID.

My therapist seems to think my attachment problems can be healed through therapy and working through the pain of my childhood. I disagree. Though I have much more insight into my attachment problems, it doesn’t seem to do anything to help change that this is the way I am.

She would say I am feeling hopeless again, as if depression or something is causing me to come to this conclusion. I don’t feel particularly depressed. My mind is actually fairly clear, and I see my thoughts and feelings about my attachment problems as a form of acceptance of my reality.

I don’t mean to be a Debby Downer, but I do think it is better to accept reality and try to live life as it is rather than chasing a mental health that will never come for those of us who have been severely neglected as children.

That is not to say we can’t have a different version of mental health based on acceptance, instead of forever chasing a higher level of mental health and living our lives in the therapy room instead of the real world.

Too many of my friends and myself have spent almost our entire lives in the therapy rooms chasing an elusive mental health that will never come.

Please don’t get me wrong. I do believe in therapy, and it is necessary for many of us to survive in the world. But, I believe many of us with severe trauma backgrounds are using up our entire lives waiting for the wellness to begin. It’s just something to consider.

Yes, get therapy help, but don’t get caught in the idea that you will get “cured” and then miss out on living your life because you spent it searching for answers that don’t seem to transform into wellness.

*Disclaimer, my therapist and others do not agree with my point of view.

Wrestling with the truth that my parents repeatedly reinforced into me that I am not lovable has turned off a switch in me that should be on to experience the human condition of love and care.

This leaves me like one of those futuristic robots who can show the slightest bit of emotion, but fall short of the real human experience.

Hiding from my truth

I was getting too close to acknowledging the intense pain of my childhood abuse. It was coming for me. I got really scared.

As someone with Dissociative Identity Disorder, I managed to dissociate it from my awareness, and eventually switch to an Identity that doesn’t experience abuse and lives in the here and now.

My system is mad that this Identity went to therapy this week and basically “wasted” the session by talking about mostly nothing.

Our experience seems normal on the outside. We are taking care of the kids and participating in life to some degree.

Our memory is still severely impaired. My son asked me my neighbor’s name, who I know well, and I couldn’t remember it. So, so frustrating.

I don’t know how long we can hold out in this safer position. I feel sadness and suicide creeping around nearby tonight.

I read an article about Designer Kate Spade’s suicide at age 55, and found myself jealous. She left a note to her 13 year old daughter telling the daughter it wasn’t her fault. My children have always kept me from doing it.

I have a mostly good life, yet I selfishly want to end it. What is wrong with me besides the obvious?

Stealing a life

I stole her life. She was young and badly hurt and didn’t care about what happened to her body, so I took it because I needed one.

I was a soul in need of a body. She was a body with a soul that had died.

Body theft. Besides sounding futuristic, it sounds like a shitty thing to do to someone.

But she didn’t want to live. She wasn’t using it. It would have gone unused and possibly destroyed if I had left her with it.

She didn’t care at all.

Still, I guess I shouldn’t have taken it. I have had it for so long I forget it was originally hers.

She’s coming back for it. I don’t think she knows I have it, but she will figure it out when she gets a little closer.

She’s been lost for a very, very long time. It is not that any part of me intentionally kept her lost. She just had no reason to find the body. When she was last in control of the body, she was a ghost. Or the walking dead. No one was home.

Most people think of me as a decent person. I would take a bullet for most people on earth.

But my therapist has learned a new side to me. She has learned I am not such a good person after all.

I abandoned a little girl who had no life in front of her because of the mental damage done to her from years of unthinkable child abuse.

My therapist thinks I should have saved her. She thinks people don’t get ruined beyond repair. I know this little girl, and there is no repairing the damage done to her mind, body, and soul.

She wanders the planet lost and broken. She does not seek to understand. She is way beyond that. At some point, it just doesn’t matter.

She reached a point of no return, which happens to those who suffer ungodly acts like she did.

She does not understand the complexity of the system of people living in her body. Not sure she will care as I think she doesn’t care about anything.

Yet, my therapist thinks I should embrace her and care for her. It sounds so lovely, doesn’t it? Except for the fact that it will kill me and every part living in this body.

We survived horror, and have only lived this long because that little girl stayed lost in our internal la-la land.

If she makes her way to us, and she is getting closer, I have no doubt we will all die.

She had the unfortunate burden of taking the brunt of the everyday trauma we experienced. She died so we could live. Yet, somehow, her pulse still beats, though her mind runs close to flatline.

I have seen her and felt her from time-to-time over the years. I have always known she was still lost and damaged and hidden within.

I felt her close by today. I could see her. If she truly comes to me, and it is entirely up to her, her pain will overwhelm and kill me.

So, for a change, I am not the strong one. I am afraid. I am afraid she will become me, and I have already seen what it has done to her. I am no stronger than her.

Complex trauma, the gift that keeps on giving.

Rolodex switching and amnesia

I am still recovering from my inpatient stay at Sheppard Pratt’s trauma program. I suppose your average person doesn’t understand why one would need to recover from being in an inpatient program.

My brain feels as though it is loosely held in place, and on any given day it can spin and spin so that I don’t know which way is up. My recent 4 week hospitalization at Sheppard Pratt was like that.

I believe being in an inpatient environment is always a very triggering situation for me. As one of the therapist put it, it makes sense for me to be triggered as whenever someone paid attention to me as a child like is done at SP, it always meant abuse was to follow.

Needless to say, that trigger and the fact that truthfully I am not in control of my life behind the locked doors of SP, my defenses are at their highest.

I learned from this last hospitalization that my childhood go-to defense was to keep me and my entire system so confused that we couldn’t put two sentences together. This last hospitalization played that defense out.

I had trouble remembering things before I went in, but once in, I couldn’t remember hardly anything. My treatment team believes I was switching so much that the “Rolodex switching ” kept my memory from working. That’s one theory, and possible, but other theories are equally possible.

I am home now and I had desperately hoped my memory would improve as the degree of amnesia I was experiencing was terrifying. It is a little like temporary episodes of dementia that come and go.

My memory is a little better but still troubling. I went to a restaurant last night and was in line with my family to order at the counter. As I walked away I had to ask my spouse what I had ordered. I had been so present and in control until I wasn’t.

Today I was thinking of my son’s birthday. I couldn’t remember the day and year for sure. I asked him when his birthday was because he is still at the age where “when is your birthday” is still fun to answer. I feel guilty that I couldn’t remember.

Things seem settled down, so why am I struggling so much?

I know I am confused and nervous and certain about this new direction in my therapy.

I learned at Sheppard Pratt that I must focus exclusively on internal communication and cooperation as my most pressing goal.

Only problem. There doesn’t seem to be a clear formula and I am honestly both certain it is the way to go but dumbfounded as to how one goes in that direction. Talk about needed manuals.

I have therapy tomorrow. In the past I was never short in the talking department, but feel confused how this new therapy approach works with my therapist.

In the past, we dealt with whatever that came up, but now I realize I must be more intentional about my work.

Perhaps I will begin by remembering to bring my new system map to the appointment. Last time I forgot.

I am afraid of this new but possibly old fractured mind that works in a state of confusion. I am sure I can’t do justice to explaining how someone can operate on the tightrope between ok and blank mind syndrome (not real).

If you can’t imagine it, count yourself lucky. It is truly terrifying.

My journey has changed

Some of you may have noticed that I have been missing in action for the past month or so.

I was really not doing well and needed intensive inpatient help with managing the symptoms of my DID and PTSD, particularly the level of suicidality I was experiencing.

I decided to go inpatient and it lasted longer than I expected. If I wouldn’t have really pushed to get out, I still easily met the criteria of someone who needed to be inpatient. But alas, I always feel terribly restless and triggered when I am inpatient, so a month was as much as I could do.

I am now happily home with my family and working to transition back into my real life. Still figuring this out and hope to share it with you as I uncover the new path of my journey.

I experienced incredible levels of amnesia and confusion while inpatient, but I was still able to gain some important insights into a new direction for my life.

I plan to share these new plans with you as I unpack myself back into the real world and my real life.

For now, I can say I realize I do have a life to live while doing this work, and I don’t have to “fix” my life before I can start living it.

I am also happy to say I am not currently feeling suicidal, which is remarkable because that is my typical normal. I know better than to get overly excited about this as I know it can change on a dime, but I do feel a sliver of hope that it is currently absent.

Speaking of hope, I did manage to gain some hope despite the incredible amnesia, confusion, transference, and uncomfortableness I experienced staying in this inpatient unit. Nothing like being locked up and power taken from you as a survivor that is seemingly required for inpatient treatment.

I am feeling well today and I am looking forward to sharing my new journey with you, and my experience during my inpatient stay.

Thank you from the bottom of my heart for all the support I received from you all.

With love and hope to you all,

Kathy