Suffering with DID

I went back to therapy 4 years ago to deal with some new trauma, and some old trauma that was awakened by the new trauma.

I stayed in therapy because I had developed a lot of clarity about how inauthentic my life had become.

Honestly, I have never had an authentic life, as my family of origin and the community I grew up in robbed me of my life since as far back as I can remember.

My cup is currently overflowing with the amount of child abuse I experienced growing up. That may not make sense. Normally, my mind can only hold little pieces, but right now, it is in the unusual place of holding a lot of the abuse in awareness instead of dissociating it all.

It seems like the memories are never-ending, and they are not like memories I can deny or question the validity. They are memories I know to be true, but had somehow managed through my dissociation to forget.

Other people I know with dissociative identity disorder (DID), seem to be surprised by their memories when they get them. For me, that is typically not the case. For me, it is like remembering a horrible old friend you tried to never think of again.

I dunno, maybe I am just worn down with the shitty cards I have been dealt. The never-ending shame and depression I feel about the facts of my life. It has taken its toll.

I have lost all hope of living an authentic life. I have been staying alive these past 4 years for my children. I haven’t wanted to hurt them or ruin their lives by me ending mine.

Always the martyr.

I am suffering. I suffer every day trying to hold onto my life for my children. Jeez, I sound like a cry baby. But it is so fucking hard to hold on all the time.

I just want some peace, love, and understanding based on who I really am, not the imaginary many versions of myself that the world knows.

Almost no one knows me. Not even my kids, which especially breaks my heart. I never set out to be a fake parent. It is just what is best for them. 🙁

I don’t hurt people or do any awful things to deserve the horrible treatment I receive when others find out any of my truth, but I am rejected and tossed into the garbage or worse, just for being my authentic self. That is how we treat victims in our world.

Who is my authentic self?

I am a wounded survivor of horrific child abuse who developed dissociative identity disorder as a result.

That in itself is apparently enough to know about me to warrant the rejection of me.

My ex-minister and supposed friends tried to take my children from me when they discovered diagnosis alone. I hadn’t done anything. My kids don’t know I have it. In fact, out of both their parents, I am confident they would identify me as the saner one.

It doesn’t matter. People can’t tolerate the idea that my mind is what it is. They can’t tolerate believing I endured the level of abuse I have experienced.

So, they get fake me. The me that is probably copied from characters off television shows and people I have observed. And fake me, I really hate.

I don’t really know any other me than fake me, so that leaves me with hating the only me I know.

I hate me.

The world is an awful place, where perpetrators are protected, and victims are the bad guys.

I know I am a victim. I did not deserve the cruelty, extreme abuse, and lack of love I received.

It doesn’t matter, though.

My life is a shit show and I work hard to hide authentic me from everyone but my therapist.

This is no way to live. It doesn’t get better, but the cruelty remains because I am not allowed to leave. If I leave this shitty world, then I abandon my kids and hurt them in ways I don’t even understand, but know to be true.

Stuck.

My abusers. My family of origin. All the fuckers from my community. You have successfully robbed me of my life. I hate you all, and hope you burn in hell.

I will do my best to push through another day. It is getting harder. I won’t make any promises, but I will try with all my might to hold on another day for my kids.

Cruelty. My whole life. Nothing but cruelty.

That’s just the way it goes.

Drifting

Drifting toward health.

Drifting toward death.

It doesn’t seem like this should be so confusing, but it is.

Some days ago, a little girl, maybe 4 or 5, stood in my childhood bedroom watching in freeze mind as my mother threw out her toys into the big green dumpster my mother had wheeled into the room.

This child did not understand, as any reasonable person wouldn’t, why her mother insisted on stripping every bit of humanity out of her.

She caused no trouble in the house. She did everything her mother or brothers told her to do. She had sex with whoever wanted it. She tried not to breathe as she was afraid it would upset them. Her existence was so minimal.

Still, with trying to do everything right, her mother hated her with such sadistic pleasure.

Her mother had made sure to strip her of everything.

Decency. Humanity. Love. Free thought. All gone.

She was forced to live in a room that only had a bed and a piece of office furniture. There could be no signs of a human child living there. Only nothingness, so she would always know she was nothing and nobody.

The little girl is stuck in this place, long past trying to understand her life.

Confusion, obedience, and an ounce of pain belonged to her.

I watched her for days. She was stuck there. I was stuck watching her. I had no explanation to give her. Yes, it was all vaguely familiar to me, but I wanted to keep it “not me” because that looks like such a painful, awful existence. Who would want that?

Feelings of suicide had been circling us as a system. I was not in as much control as I usually am, partly because watching this little girl made me want to die.

So I let the others inside me deprive the body of oxygen until I reached an altered state of consciousness. Here, I could go to the little girl in the bedroom.

Like I would do with my own wounded outside children, I reached down and picked her up and held her. She had never been held before, but she did not resist me and gave in to trusting me and let me carry her away.

I held her tightly against me, with her legs wrapped around me, and I could feel her pain and confusion. It is stuck in my heart.

I wanted to promise her that she would never be hurt again, but I knew I couldn’t do that in this very imperfect world.

She had endured more pain and suffering than a nation of people.

She would experience it no more.

I delivered her to the angels in heaven as I knew of no other place that promises the end of suffering. I told her she would be safe there, and the angels would love her and take care of her.

After I delivered her, I gasped for breath to get some oxygen in my earthly body. I was barely there. I was barely making it out alive.

I struggle to care about the damage done to my brain, or my almost lost life. It seems unimportant in the scheme of things.

I look to my childhood bedroom everyday since then, and it is empty. She is gone. She is free from the cruelty dealt to her.

I am relieved to have set her free. And uncertain as to what this means for me.

Namaste

Hiding from my truth

I was getting too close to acknowledging the intense pain of my childhood abuse. It was coming for me. I got really scared.

As someone with Dissociative Identity Disorder, I managed to dissociate it from my awareness, and eventually switch to an Identity that doesn’t experience abuse and lives in the here and now.

My system is mad that this Identity went to therapy this week and basically “wasted” the session by talking about mostly nothing.

Our experience seems normal on the outside. We are taking care of the kids and participating in life to some degree.

Our memory is still severely impaired. My son asked me my neighbor’s name, who I know well, and I couldn’t remember it. So, so frustrating.

I don’t know how long we can hold out in this safer position. I feel sadness and suicide creeping around nearby tonight.

I read an article about Designer Kate Spade’s suicide at age 55, and found myself jealous. She left a note to her 13 year old daughter telling the daughter it wasn’t her fault. My children have always kept me from doing it.

I have a mostly good life, yet I selfishly want to end it. What is wrong with me besides the obvious?

Stealing a life

I stole her life. She was young and badly hurt and didn’t care about what happened to her body, so I took it because I needed one.

I was a soul in need of a body. She was a body with a soul that had died.

Body theft. Besides sounding futuristic, it sounds like a shitty thing to do to someone.

But she didn’t want to live. She wasn’t using it. It would have gone unused and possibly destroyed if I had left her with it.

She didn’t care at all.

Still, I guess I shouldn’t have taken it. I have had it for so long I forget it was originally hers.

She’s coming back for it. I don’t think she knows I have it, but she will figure it out when she gets a little closer.

She’s been lost for a very, very long time. It is not that any part of me intentionally kept her lost. She just had no reason to find the body. When she was last in control of the body, she was a ghost. Or the walking dead. No one was home.

Most people think of me as a decent person. I would take a bullet for most people on earth.

But my therapist has learned a new side to me. She has learned I am not such a good person after all.

I abandoned a little girl who had no life in front of her because of the mental damage done to her from years of unthinkable child abuse.

My therapist thinks I should have saved her. She thinks people don’t get ruined beyond repair. I know this little girl, and there is no repairing the damage done to her mind, body, and soul.

She wanders the planet lost and broken. She does not seek to understand. She is way beyond that. At some point, it just doesn’t matter.

She reached a point of no return, which happens to those who suffer ungodly acts like she did.

She does not understand the complexity of the system of people living in her body. Not sure she will care as I think she doesn’t care about anything.

Yet, my therapist thinks I should embrace her and care for her. It sounds so lovely, doesn’t it? Except for the fact that it will kill me and every part living in this body.

We survived horror, and have only lived this long because that little girl stayed lost in our internal la-la land.

If she makes her way to us, and she is getting closer, I have no doubt we will all die.

She had the unfortunate burden of taking the brunt of the everyday trauma we experienced. She died so we could live. Yet, somehow, her pulse still beats, though her mind runs close to flatline.

I have seen her and felt her from time-to-time over the years. I have always known she was still lost and damaged and hidden within.

I felt her close by today. I could see her. If she truly comes to me, and it is entirely up to her, her pain will overwhelm and kill me.

So, for a change, I am not the strong one. I am afraid. I am afraid she will become me, and I have already seen what it has done to her. I am no stronger than her.

Complex trauma, the gift that keeps on giving.

My journey has changed

Some of you may have noticed that I have been missing in action for the past month or so.

I was really not doing well and needed intensive inpatient help with managing the symptoms of my DID and PTSD, particularly the level of suicidality I was experiencing.

I decided to go inpatient and it lasted longer than I expected. If I wouldn’t have really pushed to get out, I still easily met the criteria of someone who needed to be inpatient. But alas, I always feel terribly restless and triggered when I am inpatient, so a month was as much as I could do.

I am now happily home with my family and working to transition back into my real life. Still figuring this out and hope to share it with you as I uncover the new path of my journey.

I experienced incredible levels of amnesia and confusion while inpatient, but I was still able to gain some important insights into a new direction for my life.

I plan to share these new plans with you as I unpack myself back into the real world and my real life.

For now, I can say I realize I do have a life to live while doing this work, and I don’t have to “fix” my life before I can start living it.

I am also happy to say I am not currently feeling suicidal, which is remarkable because that is my typical normal. I know better than to get overly excited about this as I know it can change on a dime, but I do feel a sliver of hope that it is currently absent.

Speaking of hope, I did manage to gain some hope despite the incredible amnesia, confusion, transference, and uncomfortableness I experienced staying in this inpatient unit. Nothing like being locked up and power taken from you as a survivor that is seemingly required for inpatient treatment.

I am feeling well today and I am looking forward to sharing my new journey with you, and my experience during my inpatient stay.

Thank you from the bottom of my heart for all the support I received from you all.

With love and hope to you all,

Kathy

Lost and alone

I have been quiet lately, feeding off my mom’s voice in my head that if I don’t have anything nice to say, I shouldn’t say anything at all. So, I am breaking the rules.

Lost would probably best describe how I have felt most of the time lately. I can’t remember things, much more so than usual. My sense of “time” is completely off. Can’t tell you if it has been one week or 2 months since things have happened.

I am living day-by-day, not knowing if I will make it through the day.

I plan for my future and my demise all in the same hour.

I am suffering from wicked thoughts of suicide that are in my brain but don’t feel like my thoughts. It’s confusing.

I try not to act on any of the suicidal plans, yet at times I find myself getting up to go do whatever is my demise of the hour. Most times I catch myself when I am getting up and am able to stop myself. Sometimes I haven’t been completely lucky with that strategy.

Some days I feel morbidly depressed. I have resorted back to hiding in my bedroom as much as possible. I spend countless hours staring out the window, and suddenly I have an extreme depressive feeling, which follows with a graphic idea of killing myself.

I don’t know where these graphic suicidal ideas are coming from as I am much more practical than to think of these ways if I was suicidal.

I imagine there is extreme anger and pain behind the graphic ideas about my demise.

As I said, it gets so confusing. I think parts of me are “leaking” into me in a way that I cannot distinguish me from them. As such, their thoughts seem to make perfect sense to me.

Yes, I should stab myself with a butcher knife and lie down in my bed to bleed to death over night.

That is so not me, but yet it is me.

I would never do that to my children, but in my head it feels as though I will.

The world is so lonely for me right now. I am fortunate to have a spouse, therapist, and friend who know about some of this and are trying to get me help.

But, I worry no help exists.

In my life in the mental health system, there have been times when I know if I just went and worked on “x” I would stabilize or feel better. Honestly, I have no idea what x is for me this time.

Lost, pushing through each day hoping to gain some clarity the next day. It doesn’t come.

I am wasting my life, lost, never feeling grounded to this earth and my life.

The clock ticks, and ticks, and ticks. My dilemma stays the same. My fragility about my life continues.

I must have some hope hiding in me somewhere, but it is well hidden. The confusion in my mind keeps it from coming to surface. It is amazing to see the mind work so intensely against itself.

I plan for the future. I plan my demise. I don’t know how this will play out. I hope for the best, whatever that turns out to be.

DID is NOT a party

Lacking a consistent voice makes me confusing to those outside and inside of me.

At night, I often write things, whether a blog article, letter to someone, or a quick text. Sometimes I shop on Amazon while others are sleeping in my house. The difference for me is when I wake up in the morning it is a gradual unfolding of what I did the night before.

I see e-mails from Amazon alerting me to a purchase I don’t remember, and often don’t need.

I sometimes get an emergency call from my therapist before I have even awoken asking me if I am alright. That usually means some part of me has been texting or emailing her.

I almost never remember blog posts that have been written under our Mistaken Survival blog. I read them over and over, each time feeling like the first time I have read it, even though it was authored by this shared mind of mine.

I have learned to shrug and stay quiet in response to other people’s reactions to something I have done that wasn’t me. I kind of freeze because I know it was me, but it also wasn’t me. What’s the protocol for that scenario?

The mind is so adaptive. It is amazing I get through the days, but somehow I do.

It feels a lot like being lost, then found, then lost, then confused, then found, and on and on.

Unfortunately, this makes for a really spotty memory. And though I get by with the adaptive skills of my brain, it leaves me empty on the days I have the capacity to think about how little I remember about my life.

I read earlier today someone writing about how they don’t think of Dissociative Identity Disorder as a disorder at all. They see it more of a blessing and an alternative way of living.

Though I try my best to respect other’s differing opinions, it pisses me off to hear someone who has this disorder glorify it and act like it is a positive.

Here is the one true thing most people believe about DID (though not all parts inside of me agree with this opinion): if you have DID, it helped you survive as a young child when your life was so traumatic and overwhelming that your mind would not have survived otherwise.

If you truly have DID, it means there is major distress going on in your life. You can’t get the diagnosis if you are not impaired in some way.

Though I love all parts of me, even those I disagree with or can’t understand, there is nothing wonderful or great about the way we live.

I wouldn’t wish this chaos and confusion and missing life on my worst enemy. It sucks. It is not fun.

Some people describe elaborate parts who have hobbies and like to play like children. Those parts for me are hurt and damaged, and they are not having fun. They are mostly terrified every minute of their experiences.

Carrying around trauma on a daily basis and trying to survive is not fun. My life is extremely difficult, and profoundly sad due to the lack of connection I feel to the world and those in it.

This is no party. For me, it is a serious ordeal of surviving a life of torment and confusion.

I’ll let you have your opinion, and do my best to be respectful, but I can’t make that promise on a bad day.