It’s been a little over 3 weeks since I started low-dose ketamine nasal spray as part of my treatment regimen for CPTSD, DID and suicidality. I have had phenomenal, life-changing results that seem entirely impossible to be true. The stability I feel just doesn’t seem believable to me, and I am still waiting for the bottom to fall out.
You can read about my initial experience here if you are interested.
At 3 weeks in, I have been able to decrease the ketamine doses. The first two weeks I did one nasal spray on Monday/Wednesday/Friday. Since I responded so positively with the first dose, and the stability seemed so solid, I decided to push it out to one spray a week for the 3rd week. I’ll keep you posted how this goes, but so far, it is holding me in a good place of stability and mental clarity.
As a side note, I am not taking the commonly recommended antidepressant to go with it as I am not a fan of of them for me, and I wonder do people really need to take the antidepressant since it wasn’t necessary for me. Anyway, I know someone else may need something different, so I recognize it may be necessary for other people. I do take a sleeping pill at night, which is the only medication I take besides the generic ketamine.
As someone who experienced severe developmental trauma, I have been living a lifetime of PTSD flashbacks, debilitating depression and anxiety, frequent thoughts of suicide and self-harm, and the unsteadiness that comes with having dissociative identity disorder. Oh, and the most difficult consequence of my awful childhood has been trying to live a decent life after being raised by a family that didn’t love me.
The traumatic patterns I learned as a kid have been extremely difficult to change as an adult.
With my new ketamine-induced stability, I have honestly been a little confused about what to do with myself. I don’t feel like myself because I am not used to this ability to regulate my emotions, deal with stressors, and not think about killing myself on-and-off throughout my days.
For me, ketamine actually accomplishes what DBT is supposed to accomplish for those of us with CPTSD.
I can’t completely say, oh, I tried ketamine and now everything in my life is perfect. It’s not. But it is 1000% better and more manageable. The difficulty with the issues I was struggling with have gone from a 10 to a 3, which has made a very significant difference in my ability to cope and live my life.
Since the ketamine also enables me to think more clearly, I have had the opportunity to think about what is still causing my life to be messy, or less than good. By no surprise to me, it’s my attachment issues. Turns out ketamine can help a lot, but it doesn’t help with the aftermath of growing up in a family that didn’t love you.
My earliest messages from my family were: you don’t deserve love; you are unlovable; you are too much so make yourself small; there is something wrong with you; everyone hates you, so shut up and stay quiet; you don’t deserve happy; you are trash and don’t deserve anything good; you should do us all a favor and kill yourself; the only thing you are good for is sex.
So, sadly, the ketamine doesn’t take away my belief that I am a terrible, no-good person who doesn’t deserve love.
Since the ketamine did take away the nonstop flashbacks of childhood abuse, I can now actually focus on these horrible beliefs that I have about myself. For once, I will be stable enough to stay focused and safe while I deal with the real pain of my childhood. I am done talking about the horrific abuse I suffered as a child because that is in my past, and I need to live in the present.
Talking about my abuse did not help me recover from my traumatic childhood. I did a lot of therapy, and it just didn’t give me the results I needed to recover from all the trauma. I do believe there is value in therapy, but I honestly do not see it alone giving most people the results they need to recover from CPTSD.
Unfortunately, in the present, I hold these really horrible beliefs about myself that I can’t seem to distance myself from like I can the memories of abuse.
Maybe this is the real work of therapy I have been waiting for. It’s so extremely painful for me that I am probably going to drive my therapist crazy with the slow pace and resistance I am going to put up to defend myself. I really can’t help it no matter how hard I try not to do it.
Ugh. I have no idea how to even begin to tackle this horrible belief system I have about myself. At this moment, even with my new found mental clarity, I can’t even intellectually believe that those things aren’t true about me. I know usually starting in an intellectual place is easiest for me, but at this point, that seems like that might be a far off accomplishment. But, I will push like hell to get there because I will not waste the miracle of what the ketamine has done for me.
Ketamine still allows me to feel the awful feelings that go along with severe trauma. The big difference is that ketamine makes it so I can mentally get myself out of a suicidal spiral as my knee-jerk response to these feelings. Instead of going right into a suicide plan, I seem to have the wherewithal to recognize my suicidality and to talk to someone about what is going on with me. It’s not alway easy to find someone to talk to about what I am feeling and thinking because I only have a few people in my life that understand it without freaking out.
Once I find someone to talk to, to just get it out, the suicidal thoughts melt away. This was definitely not possible pre-ketamine.
I am excited to see if the ketamine continues to hold me in a place of stability, and whether it quite possibly might allow me to do a level of talk-therapy that I had never done before. A level that may actually bring me healing?
But make no mistake, I do not believe talk-therapy without the ketamine would bringme closer to healing. The ketamine has been the missing ingredient to my healing, and I just wish I could get others to understand this may be the missing ingredient for a lot of other people like me.
I have become super-annoyed by any mention of the 3 phase approach to treating Dissociative Identity Disorder (DID). As put forth in the DID treatment guidelines by the International Society for the Study of Trauma and Dissociation (ISSTD), these are considered the gold-standard recommended steps for therapists who are treating someone with DID:
1. Establishing safety, stabilization, and symptom reduction.
2. Confronting, working through, and integrating traumatic memories; and
3. Identity integration and rehabilitation.
It sounds like an easy formula for assisting those with DID, but like previous treatment recommendations for DID, this 3-step phased approach is seriously flawed and needs updating (it’s been 10 years of minimal success).
Unfortunately, the vast majority of DID patients get stuck in stage 1, or if they manage to get out of stage 1, it is too easy for them to get knocked back into the stage 1 need for safety and stabilization by triggers in life and therapy.
Talk therapy and learning new skills is not effective enough in helping people with DID to successfully master the phase 1 goal of safety and stability because it is too easy for them to fall back into deeply rooted familiar neural pathways that make them unstable again.
The deeply-rooted neural pathways of someone who has DID is what keeps them stuck in a dissociative reaction to stress, which is why it is critical to address rewiring the brain of a DID person in stage 1.
Instead of therapists challenging themselves to figure out how to successfully help their clients master phase 1, they are actually told by these same guidelines that some people just don’t have the capacity to get out of stage 1, and so they can therefore feel ok when their clients stay stuck in phase 1 and a life of misery. This is completely wrong and cruel to those suffering with DID.
It is quite frustrating that the majority of trauma therapists will identify Bessel van der Kolk’s “The Body Keeps the Score” as the book that has most influenced them, but strangely, almost every trauma therapist has little to no expertise in helping with the neurobiological effects of trauma, which is kind of the point of this book.
I believe there is a small percentage of people who can successfully manage this 3-phase approach as it is, but what I see from the vast majority of people I know who have DID, people get stuck in the phase 1 need for safety and stabilization. They may get stabilized, but either by working on trauma or some other life trigger, they slide right back into the need for safety and stabilization, which leads the person with DID to feel like they are failing therapy because it seems impossible to maintain enough forward momentum to make progress in therapy.
When your brain is wired for dissociation and PTSD, you can’t simply rewrite the way the brain functions through talk therapy and skills.
What if the very first step is impossibly flawed because therapists have been giving their clients the wrong advice on how to reach stabilization (DBT skills, mindfulness, CBT therapy, corrective therapeutic relationship, blah, blah). These methods can be helpful, but they don’t help the client achieve a strong enough mastery of safety and stability.
The type of stabilization achieved by talk-therapy and skill building is too weak to endure the triggers faced by the highly traumatized person.
Is it possible the answer to phase one stabilization is outside the traditional therapist’s wheelhouse, and involves neurobiology instead? Something that will rewrite the neural pathways?
Is it also possible that stabilization can occur in days-to-weeks instead of the years therapists typically spend on this with desperate clients?
I believe it is possible there is a much more effective and efficient way for traumatized individuals to get stabilized quickly.
An open mind and a belief in miracles is required at this point.
As the pandemic was nearing an end, I found myself loosening up on my fight-or-flight mode of survival that served me extremely well during those stressful months. As good as that might sound, what followed for me was a quick dump into the gutter of mental health hell. Apparently, my mind needed to do something with the build up of 14 months of limited parts activity I experienced to hold it together. If you are confused by this, try to understand that I was in the trauma of the pandemic, and to survive, I could only have around parts who were strong and didn’t feel, just like most of my childhood. The emotional and vulnerable parts were tucked away. The parts of me that had been frozen during the pandemic crisis were starting to rapidly thaw. Their emotions were overwhelming.
I rather quickly became depressed, suicidal, anxious, dissociative, and unable to deal with the stress of my children. Each day, I was becoming more unstable. I had reached a point where I had decided I was going to kill myself or go into a hospital (note, there are no hospitals that treat or believe in DID within my state, or even several states away, which makes this option less likely).
On a scale of 1-10 (10 being the worst), I was a 10 on the suicide scale. I couldn’t even hold onto the love for my children and what my suicide would do to them to prevent me from doing it. I was too far gone, and my suicide was becoming imminent.
How I stumbled upon Ketamine, stopped a serious suicide attempt, and saved my insurance company $30,000
In a complete fluke, a holistic doctor I work with for health issues had just prescribed generic ketamine nasal spray for depression and anxiety, and had no idea of the severity of what I was suffering because I hid it from them like I do most people outside a therapist’s office. I made the decision that I was going to try it as my last ditch effort before I checked out. The imminent risk and permanency of suicide outweighed any reservations I might have had.
The Ketamine Experience
I simply took one small spray of the ketamine in one nostril. I could immediately feel it coming down my throat as there was a slight burning feeling that lasted for a few minutes. After the burning sensation, I could quickly notice I was starting to feel what I would call a manufactured dissociation as it didn’t feel how I normally feel when I dissociate.
The dissociation lasted for 30-45 minutes, and then I felt kind of high. I was feeling emotions like funny, happy, and curious —funny and happy are definitely not normal feelings for me. I knew not to drive my car or make any big decisions. Though I did shoot off one very wordy email I kind of later regretted 😎.
The dissociation and high were gone within 2 hours of the nasal spray. I was left with a sense that my mind had been cleared of cobwebs I didn’t even know were there. I very dramatically had a mental clarity I wasn’t used to. I was much more aware of everything happening in my environment.
By the 3rd hour, I began to evaluate my thoughts and feelings because I knew this was a test to help me figure out what to do with my suicidality and depression. I scanned my brain for thoughts, emotions, or voices of parts, and to my amazement, my suicidal feelings were completely gone, and I had no sense of any depression, anxiety, or even dissociation. I was completely grounded in the present with a strangely crystal clear mind. I was actually worried I was going to have a manic episode because I was feeling so oddly good.
My suicidality went from 10 to 0 in just a few hours.
Later, when my kids each did their behaviors that had been over-stressing me these past few weeks, I felt like a super-parent who was not the least bit phased by their antics.
As it was approaching bedtime, I was worried I wouldn’t be able to go to sleep because: 1. I always struggle with insomnia (and sleep meds don’t always work for me), and 2. I was worried the feeling good and crystal-clear thinking was going to make me want to stay up all night being productive at some random thing. Surprisingly, I took my normal low-dose sleeping pill and easily fell asleep. Even more surprising, I was able to sleep-in the next morning, something my anxiety hadn’t allowed me to do for years.
When the day of my first ketamine dose began, I was looking at either a $30,000+ psychiatric hospitalization, or ending my life and traumatizing my family and friends.
Instead, one spray from a $45 bottle of compounded generic ketamine completely removed me from that suicidal crisis and stabilized me.
My mind has stayed clear, like really sharp, and my emotions have been extremely easy to regulate.
My ability to emotionally regulate was put to the test almost immediately. The day following my first ketamine dose, I was scheduled for a therapy session with my therapist who I was having some serious attachment conflict. The session was indeed volatile, and one that would have normally sent me into a suicidal tailspin. Instead, I noticed I had a few fleeting suicidal feelings during the session, and I moved on, and they didn’t stick with me post session. A highly stressful situation was completely manageable, which is unheard of when it comes to me having attachment conflict in therapy.
Maybe some of you don’t see how big of a deal this is. Before ketamine, I was emotionally wobbly every day. I never knew what little thing might send me off into depression, suicidality, overwhelming anxiety, or into my constant dissociative response pattern that creates quite a bit of amnesia in my life.
My use of ketamine is like someone handed me a brand new life. A life that has been missing for over 30 years. I was finally free of the debilitating existence I had known almost my entire life.
I am finding the experience of my new brain extremely foreign. I don’t feel emotionally overwhelmed. I don’t feel depressed, suicidal, or even dependent on a therapist at this point (I have struggled with severe disorganized attachment, so this is kind of a big deal for me). My mind just feels clear and calm, which I really am not used to.
I waited a couple of days and did a second nasal spray of the ketamine. I was still feeling completely stable before this dose, but I wanted to do what was recommended by the doctor who prescribed it. With the second dose, it was barely noticeable and I didn’t experience the dissociative and feeling high side effects.
I have researched ketamine a lot since then, and I know others typically don’t respond for a week. There are several ways to take in ketamine, and an array of different dosing strategies. The doctor that prescribed the ketamine I used was a believer that low-dose and through the nose to get closest to the brain was the best method.
Ketamine seems to be a miracle for me. Although I live near a big research center that has all sorts of clinical trials going on for ketamine, I know I would be excluded from those studies because of my dissociative disorder (a familiar narrative for those of us with DID). We are just too much with our diagnosis for a lot of things..
Alternatively, there are many ketamine clinics that have set up shop in my state so that they can make a lot of money off this new treatment. Typical treatment prices seem to be around $400 a session, and insurance rarely covers it according to their websites.
For once, the compounding pharmacies seem to be the most economical place to get it, but finding a doctor who will prescribe it this way may be the challenge.
If you are a long-time sufferer who has given up on treatment for DID/CPTSD, or someone who suffers from chronic depression and/or anxiety, I would give ketamine a try if you can get your hands on a legitimate form of the medication. I am not recommending the street drug that is a higher dose of ketamine and will do who knows what to you. Try Googling ketamine near you and see what comes up. There’s lots of research, books, and articles about the way it works and what it has been used for.
There is a fascinating article about using ketamine with complex PTSD trauma survivors here.
I have to believe an angel dropped ketamine in my lap when I was at one of my lowest points. It clearly saved my life, and it just may be offering me the chance at living with a non-traumatized brain. As each day ticks by, I am still amazed at the calm and clarity I feel.
As a takeaway, I hope that each of you who reads this will consider that maybe people with DID aren’t succeeding not because they aren’t working hard-enough, committed enough, smart enough, or don’t have the ego strength or attachment stability to succeed in therapy. Maybe it really has more to do with how their brain is wired, and maybe there are easy fixes such a ketamine that will address the neurobiological effects of developmental trauma.
Just maybe, the most difficult repair is easier than everyone thinks.
During the COVID pandemic, I have been operating in “fight mode” these past 14 months. My extreme survival instincts kicked in without having to give it much, if any, thought. I remember telling my therapist “I” (meaning my DID system) was built for times like this.
Those early weeks of the pandemic, I remember sitting for hours watching the news and the circus of people who were supposed to lead us out of this mess I had never seen before in my lifetime. At some point it clicked. Things were really bad, and if I wanted to live, and keep my family alive, I had to hunker down into survival mode and follow the rules even as they changed and didn’t make sense on a daily basis.
I had to shed lots and lots of parts of me. I couldn’t afford to be vulnerable, soft, rebellious or childlike. I needed the strongest, toughest, smartest parts of myself to be here. The others would have to go.
I did not consciously choose to rid myself of the vulnerable parts of me, the parts of me that might get in the way of our survival. I experienced what I typically experience, as if a higher being inside me had made some choice to reorganize the system without my input. I just rolled with it as usual.
I had moments where my hidden parts were quietly active as the pandemic wore on. Still, their expression within me was very limited because I could not risk dying, and in “fight mode,” I needed only the best fighters.
Typically with dissociative identity disorder (DID), there is a lot of noise in your head. For me, that noise is different parts commenting on things going on in our life. Opinions, name calling, crying, planning, negotiating and more goes on all the time. So, I have learned to live with “noise.”
With all that noise, the benefit is I know what is going on with the parts of my system. I know when someone is upset, happy, or creating a problem within the system. This is critical information to have if I want to have some semblance of a life in the world.
So, with all the silence over the past 14 months, I don’t know the answers to questions about other parts of me. I have no idea how or what they are doing.
Probably more importantly, I have become phobic again to interact with the other parts. It’s a real thing, not wanting to talk to other parts, not wanting to know the answers to important questions, not wanting to experience them and their pain and other unpleasant feelings/memories they bring to the table.
Without acknowledging your parts, you can pretend like you don’t have a trauma background. You can try to pass as “normal,” but truthfully, if anyone looked closely, they would see you have an extremely limited range of emotions and history (hello DID amnesia). Fortunately, most people are so self-absorbed, they don’t even notice.
The parts hold the deepest shame possible for someone like me who has experienced horrendous abuse. Unimaginable things, things you wouldn’t even believe, they hold for me so I can function.
Don’t get me wrong, I know a lot of what has happened to me in my past. But my parts allow me to stay detached from it. I have gotten close to them and felt their pain, and it is awful, and no one in their right mind would want to absorb that. I fear absorbing it and it truly becoming part of me, which keeps me stuck in recovery.
I started having something happen to me during the pandemic, and I really wasn’t sure what it was. It started with me waking up at the same time every early morning, making the loudest, panicked, god-awful sound that was kind of like gasping for breath while drowning. As I would get my bearings, my mind would immediately turn to self-harm and suicide because my body and mind feels so bad, and for whatever reason, those thoughts take it away. Except it started happening earlier and earlier during the night, and I can never go back to sleep after that cortisol surge.
I have been living these past few weeks on 3 hours of sleep. I didn’t tell anyone because I can still function fine with that much sleep. But what I didn’t count on was the toll it was taking on my system. It enabled a little part of me to come forward.
On que, a young part of me came out and had a lot to say about what was happening to us at night. I don’t know where she came from with so much to say. I never do.
I have been struggling a lot this past week. Lots of dissociation, memory loss (switching), suicidality, thoughts of self-harm, detached from everyone in my life, feeling depressed, and generally disconnected from the world.
Today, I was quite shocked to hear my little one reveal new memories in my head. She did not really speak of them, but I could see and feel them. I was horrified as I thought I was done with new memories. I don’t want anymore bad feelings. I don’t want new knowledge of trauma that I will have to come to accept whether I want to or not.
But, there she was. Seemingly out of nowhere. Telling the story of what is happening to us at night. She had so many answers, and I didn’t ask her for them, but she gave them to me anyway.
I worry because we are living in a different world. A world where therapists aren’t as accessible to me as they were before the pandemic. I had safe people and places to get the support I needed. I clearly don’t have that kind of help now as therapists seem to be the last to crawl out of the pandemic “hole of fear” despite getting their first responder vaccinations.
I worry for the little girl and others who share this memory. I worry for myself and what this new memory is going to mean to me. Will it change my history once again? I have a fear this new memory involves someone specific, and I don’t want it to, but it is pushing up against my consciousness.
I worry about the level of dissociation I am experiencing. I worry that I am doing things and not understanding what I am doing. I seem to be returning to an old, familiar, but troublesome way of living with my DID.
Yet, there is not much to do with that worry except to get lost in the dissociation that will make me forget I am worried. What choice do I have?
I feel like a broken record that no one is listening to. I guess this is in line with why I rarely express my needs. The fear that my needs don’t matter, as was my daily life in my childhood. Ugh, that sounds victimy, and I hate sounding that way.
Let me be perfectly clear. I have multiple mental illnesses that significantly impact my daily functioning. 33 years ago I had my first Major Depressive episode. 32 years ago I was diagnosed with Dissociative Identity Disorder (then called Multiple Personality Disorder) and Post Traumatic Stress Disorder.
I have had periods of high functioning, and also periods requiring psychiatric hospitalization and heavy outpatient support during difficult times. I have successfully worked for periods of my adult life, and I have been on disability twice in my life.
My symptoms I currently struggle with the most are amnesia, confusion, no sense of time passing, thoughts of suicide and self-harm that seem to come out of nowhere, inability to feel most things, disorganized attachment that affects my ability to parent, chronic anxiety, and flashbacks that make it extremely difficult to function.
I have come to accept that I will have a life-long problem with mental illness that needs to be managed in different ways depending on how I am doing. I no longer believe the delusion that I will be cured if I only find the right therapist or do the right therapy. This is not me giving up, but instead gaining wisdom with age.
Patience is something we have all had to learn during the COVID pandemic if we wanted to survive. The world was turned upside down, and life as we knew it was gone overnight.
Unfortunately, those of us with mental illness still have our mental illnesses and need extra help surviving in this pandemic world that is actually quite triggering for many of us with trauma backgrounds.
I care deeply about my therapist, but she has kind of abandoned me during the pandemic. I have tried to be understanding and empathetic that she has her own fears going on through the pandemic. But then she got vaccinated as a first responder. Then I got sick and realized that medical providers all over town were showing up for work and seeing patients without any problems. And then my teenager’s therapist started seeing her clients in person.
I talked to my therapist in one of our not-very-useful phone sessions, and I pleaded with her to come up with a plan for what she was going to do to see clients who needed to be seen in person. I was honestly shocked that she didn’t have any sense of a plan, and seemed to want to just continue doing phone therapy with people, despite the fact that she was vaccinated and had returned to normal life in other areas of her life. She promised me she would come up with a plan. Two months later, nothing.
Over the phone, it is quite easy for my therapist to ignore when I am suicidal and need her help. It is easy for her to say it seems like I am doing better when I am actually having a horribly destabilizing day. She doesn’t have to see my emotions, my pain, fear, dissociation, and need for her help. She can just pretend that she is doing her job and everything is alright, despite those moments when I gain the courage and tell her I am not ok and need her help.
My therapist is retraumatizing me.
She is gaslighting me when she pretends like I am ok even when I tell her I am not. She literally doesn’t even acknowledge those rare times when I tell her I am suicidal or struggling with self-harm. She offers me nothing.
She has abandoned me. I definitely agree there was a time when it was right for her to isolate in fear of COVID, but that time is long past since she has been vaccinated, I have COVID antibodies and have been vaccinated (solely in hopes that I would be “good enough” for her to see me then). This rejection of me sets off a cascade of attachment craziness no matter how understanding I try to be.
I have come to the conclusion that either my therapist just won’t get help with facing her own fears about COVID, or she has realized that she can get away with doing this half-ass teletherapy so it makes her life easier (she often runs errands in her car during our telephone appointments, and she doesn’t have to actually sit with my pain).
My therapist, whom I love dearly, has become more like a close friend whom I pay so I can periodically confide some of my secrets over the phone. We aren’t doing therapy, and for a while, that was ok. But I have held on as long as I can.
It’s not clear where I should turn. My therapist may have abandoned me, but I struggle to abandon her (hello attachment issues). There are few therapists in my area who understand dissociative identity disorder. And because the pandemic has created its own mental health crisis, most therapists aren’t even accepting new clients because the demand is so high.
My first go-to is to decide to give up. To end this lifetime of struggle and suffering. Then I argue with my selves that I will not abandon my kids. My kids need me to help them get to adulthood.
So this leaves me in the familiar childhood quandary of there being no right answer. Nothing that is going to save or even help me. So I am on my own, spiraling downward when I shouldn’t be if I just had some help. This isn’t fair, but I know the very first lesson of my life was that I should not expect my life to be fair.
This pandemic has done something to me that after almost an entire year of it, I still can’t really explain it. I wonder how many others with Dissociative Identity Disorder (DID) are in the same boat? I have moments of recognizing how my complex-PTSD affects me during the pandemic. But the DID, I don’t know.
Sadly, my therapist who is trying herself to survive this pandemic, is of little help to me as a therapist. She seems more like supportive friend material now. Maybe because our sessions are over the phone, it just doesn’t work well for most of me. I can also clearly hear her own stress most sessions as she deals with her own feelings through the pandemic.
I think the constant stress of the pandemic keeps me in fight/flight/freeze on a daily basis. There really isn’t anything to de-escalate it as the truth is the fear is real. None of us could have imagined our lives like this, and none of us know where we are headed. But, with this comes a constant cortisol surge. Part of why I know this is happening is because I am never tired.
If you are interested, I actually found a supplement that stops the Cortisol surge enough so I can at least sleep. I got the idea from an Amino Acids expert named Trudy Scott if you want to research it. The product name is Seriphos by InterPlexus. It is now a product I can’t live without, and more helpful than any psychiatric drug I have had.
Admitting there is little-to-no mental health help available to those of us who usually need a lot of it is an interesting thing. Honestly, I try really hard not to let my mind focus on that issue for longer than a split second. To do so is too reminiscent of a brutal childhood with no help and no escape. I can’t go there again.
I joked with my therapist the other day when she was expressing her pandemic fatigue that it was much easier for me because my DID gives me little sense of time. Intellectually I know how long we have been in this pandemic, but honestly, it feels like only weeks have gone by.
I am mostly coping without the help of my therapist. I am that child who got us through our childhood. That child who should not have survived, but somehow managed to. I keep my head down and keep pushing forward trying to get me and my family through this. It helps me understand how I might have survived something so horrific as my childhood. My auto-pilot survival part has taken over. Maybe those of you with DID have found this to be your experience too?
I made it 10 months before getting COVID. I was so careful, but one lapse in judgment, I let an electrician come into my home not wearing a mask because I mistakenly thought I was safe because I had on a mask. Never before have I let someone in my house without a mask. Perhaps the reason I did this is because this electrician was an abuser from my childhood. F-ing figures.
The very first symptoms of my COVID were 3 nights of very bizarre dreams. I was telling a friend about the strangeness of them the morning I came down with the full-blown symptoms. I knew something was wrong, but couldn’t pinpoint it.
When I got COVID, it attacked my brain, which was weird because I was so worried about my lungs before getting it. I know to the average person that may sound crazy, but I don’t really care. When I was in the emergency room, the doctor there validated me saying “we know that COVID gets into the brain because we have autopsies that show the virus is there.”
I believe the bizarre dreaming was the first sign it was in my brain. Then came the headaches. Then came the extreme head pain that felt more like brain torture going on in multiple places at the same time. Then I developed what felt like severe earaches that would come and go. Then everything turned surreal, in a way that was different than my regular dissociation, and I thought I was going to die.
I abandoned traditional medicine and went with a treatment protocol that the NIH had been ignoring, but my kids’ infectious disease doctor believed in (Marik COVID Protocol, if you are interested). I had already been taking the supplements, but when I got the Ivermectin my brain symptoms and high fever disappeared within a day. It was a miracle, but like DID, most people assume those of us who believe in it are just crazy. No matter, but I share it here in case it saves one other person.
I knew with the Adverse Childhood Events (ACES), my age, and the fact that I had asthma, I could die from this. Strangely, the only two things I told the ER doctor were 1. I don’t want to become brain damaged, and 2. I didn’t want to die. It was one of those DID moments where I was surprised what came out of my mouth. Internally, I marveled that that was what I found most pressing to say in the moment.
Anyway, I survived it. I am proud that I did. I had prepared for it with all the right supplements and medications. I still have some lingering symptoms, but I at least survived it.
The “experts” say that COVID will often attack what is already weakened in a body, so they say people with psychiatric symptoms will likely see a worsening of those symptoms. That’s a scary thought since I can’t imagine worse. But, it is true so far that I have moved from horrible, but medication managed insomnia pre-Covid, to severe horrible insomnia post-Covid.
I don’t know why I am writing all this kind of interconnected stream of thoughts down. Except that I know I need to write to try to get myself back.
I have felt paralyzed during this pandemic, and that scares me. It also keeps me alive. But I know it is a terrible way to live long-term, and I have no idea how to change it. I actually miss the challenge of living life as a trauma survivor. At the same time, I enjoy the luxury of it being socially acceptable to stay at home everyday and do I don’t know what. With my dissociative skills neatly intact, the days just blur right by.
But, paralysis with my DID means that most of me is missing. Those many, many parts who make me who I am are just not here the majority of the time. No, it’s not spontaneous integration. I haven’t become a singleton. It means I am so terrified I am locked into survival mode, repressing the majority of who I am. It’s lonely and I feel almost nothing for a year now. 🥺
It is hard for my brain to push forward with my usual coherent thoughts. Each day during the pandemic, I just keep moving forward in crisis mode and it never seems to end. If I slow down, I get consumed by depression and lack of energy, so I have to keep moving to survive.
I shouldn’t feel sorry for myself because I know just about everyone is struggling with the way we must live during the pandemic. Maybe this is why it is hard for me to put my thoughts or even words together on paper.
I am so tired. Probably because I am surging in cortisol and burning out my adrenals. I also recognize every day is like Groundhog Day. Nothing really changes. It’s stressful as hell, but I know the stress keeps me moving, and to not move will allow feelings of depression and suicide to creep in.
I am mad at my therapist, but not really mad because I don’t even have the energy to experience or express that feeling too much. I also know she is struggling through this pandemic too, but my irrational child parts feel so abandoned.
It is a fight not to quit therapy again. I don’t have the money to have wasted sessions with her, but I continue to do so because I am scared not to. I hate that she will only do phone sessions with me. I am also triggered by her feelings that I might be contaminated with COVID, although she has never directly said so. Still, it brings up childhood feelings that there is something bad about me.
Of course the big one is that I don’t matter enough to her when the chips are down and she needs to prioritize her own health. My adult brain understands what she is doing, but my child selves feel painfully abandoned.
Having DID and not being able to get in-person support is so hurtful. It’s as if the therapy world suddenly decided we are all doing much better than many of us are (I am happy for those of you who are doing well). Suddenly, our survival is not as important, perhaps we are just collateral damage to this pandemic.
Don’t get me wrong, I have a healthy fear of the coronavirus. It is not something to play with, but I also feel like I have learned how to function safely in the world with my mask, hand sanitizer, and social distancing.
This brings up the “if my therapist really cared about me, she would see me in person.”
I am struggling. Struggling with just about everything. So conflicted inside about whether I should just quit therapy or that is the dumbest idea in the world.
I hate that I can’t get the support I need. I hate that my therapist is so caught up in this stupid pandemic that I barely matter to her.
I know I have returned to trauma time almost 24/7. I can’t make decisions which is usually a pretty good indicator I am frozen in trauma time.
I just love how everyone pretends like those of us with DID and are in need of support don’t really exist anymore.
I guess it is our own fault for not screaming loud enough, or maybe it’s just because the whole world is fighting us for scream time.
Let’s stop pretending that those of us with serious mental illnesses are doing ok, and that the fact that our therapists have abandoned us is going just fine. I do understand their desire for self-preservation, but enough is enough.
Psychotherapy can be done safely with masks, social distance, and hand sanitizer. The restaurants and stores are making it work. It’s time for the therapists to get off their home couches and their teletherapy.
Some of us are dying out here for reasons outside the Coronavirus. Staying at home indefinitely hiding from the coronavirus is not the answer for anyone. The mental and physical cost is severe.
Therapists, it is time to start doing your job again, and not just for the people who get enough out of teletherapy.
It can be done safely. Be creative. Let go of your irrational fear that we can’t meet in person with appropriate safety measures to protect us all. Heck, have therapy outside if you need to, but stop ignoring those of us who don’t find help with teletherapy.
Model strength, creativity, and courage. We need you to do that as much as you need it for yourself.
Living through the Coronavirus pandemic with Dissociative Identity Disorder makes for some interesting times.
I find my life is probably really disorienting under this sheltering-in-place set up. In some ways, it is perfect for the way I live. I now have an excuse to stay home everyday and no one thinks anything of it. The one huge difference is I am locked in with my spouse and two children every-single-day.
My days go by quickly and are very much a blur. My memory troubles me a great deal as it is very noticeable to me that I am losing time and not remembering much. I have internal conversations on the daily as to whether I am developing dementia or it is just the DID.
If I lived alone in this stay-at-home life, I think I would accomplish a lot, but I imagine it would really suck. My days go by quickly because I am actually having to run a household for my family. So, in some ways, I am doing more. I am cooking, ordering the groceries, running the family budget, helping both my kids with their own therapies and school work, doing some laundry, helping my kids with their medical issues and more.
I have moments where I forget about the DID and think about getting back to work soon. God knows our family needs the money. Then I catch myself throughout my days not being able to remember even the most basic things.
Truthfully, I think I could probably get away with working with the serious memory lapses I deal with. Most people are too distracted or self-involved to even notice —thank god. It creates incredible anxiety within myself, though. Always fearing I am going to be found out by those who think I am a competent adult.
Though in some ways this damn Coronavirus has made my life easier, I worry that it will continue on and my life will be one endless blur until the end. Maybe it would be anyway if life was normal, and maybe the normal life distraction just doesn’t allow me to realize how messed up it all is.
I’ll be honest, I am not one of the writers amongst us. I am pretty sure I am not saying much here. However, I do know other parts of me have lots of good stuff to say. I don’t really know why they aren’t writing anymore. Maybe this trying to be normal for the kids all day is just wearing us down or it keeps us from getting vulnerable.
My outside kids have not much to do but to notice when I am being different. God knows I don’t want to screw them up any more than they are, so I am really trying my best to be in parent mode, which doesn’t allow for much vulnerability.
My parts are being amazing with trying our best to hold it together so we can parent the kids and take care of life in a pandemic. Don’t get me wrong, we have had a few moments, but not nearly as bad as I would have thought.
In some ways I realize my childhood of nonstop trauma made me built for living through this awful pandemic. It gives me the excuse I need to stay I fight or flight, to be planning for our safety, and to stay safely in our home.
I wasn’t doing therapy for a while (can’t remember how long—weeks or months), and my therapist contacted me in a moment of weakness. I talk to her on the phone once a week most weeks, though I do try to cancel when I can to save money. Therapy over the phone, or even scarier over the video, doesn’t work for me like in-person therapy does. It doesn’t feel anything like regular therapy to me, so I feel guilty spending the family money on something that is more liken to a check-in or chat.
I know I have had a few seriously destabilizing moments that I needed my therapist, but I now can’t even remember what they were all about. I do know I have had some suicidal moments, but honestly, not as bad as before all this happened. I think it is because I know my family needs me to get them through this.
I am getting kind of tired of being the together one to lead us through these unchartered times. I dunno, maybe it is better this way to force me to do something productive.
I hope we will start writing again as I think we have some useful things to share.
I have been away a lot lately. It’s been a combination of extreme stress going on in my life and losing time.
I find that I am losing time and not realizing it, which makes me sad.
Facebook is a big revealer of lost time. I look back at memories from past years to see sweet pictures of my kids, but lately noticing all sorts of writings that I have done over the years and have zero remembrance of and no idea what I am even talking about. It is not that I sound incoherent. I just have no understanding or even a remote memory to what I might be talking about.
Somehow I have been living in this cloud that has kept this losing time from me. I have been diagnosed a long time, and I like to think I have a good bit of co-consciousness, so normally I can figure out enough to understand what the heck I was talking about.
I know my system was designed to keep this stuff from me, but I also thought I was further along than I apparently am.
Yesterday, I got on my daughter’s phone to deal with some boys who had sent some inappropriate texts. It took me about 6 hours to realize it wasn’t me who did that talking to those boys and threatened to call the police on them.
I wonder how many times I do this subtle switching in a day. How much am I forgetting?
I belong to a secret FB group for survivors of DID and ritual abuse. I used to get support in that group, but I stopped because I realized I had all sorts of posts under my name that weren’t from me. They weren’t from child parts, but parts similar to me, but definitely different in some major ways. It became too overwhelming to see post after post that I didn’t recognize and didn’t have any sense of losing time.
I was thinking this morning that my biggest disabling part of DID is the memory loss, which is not news if you follow me. Yeah, I am suicidal and have attachment issues and CPTSD out the wazoo, but that is all manageable compared to the memory. Then I was thinking for me, do I really have a mental health problem as opposed to a neurological problem since my memory seems incapable of storing and being accessed correctly.
I know, it probably doesn’t matter to you what it is called or how it is classified.
It saddens me, though. To know I am living a life where I am missing so much of it. I guess it is a little like Alzheimer’s, but knowing you have Alzheimer’s which I think is more painful.
Now that I am getting older, people just attribute all the mental lapses as old age (though I am not that old). The neurologist who gave me an exam where I had to remember things was perplexed how severely I couldn’t remember the things she was testing me for, but in the end just attributed it to cognitive decline due to old age.
I was around my family over the holidays and I am hearing myself call my perpetrator brother my son’s name, and he call me his daughter’s name. We joke as if it is old age, but I know it is more likely that we are triggered and our parts are having trouble keeping things straight.
Anyway, why is Alzheimer’s a neurological condition and my similar memory impairment is a mental illness? Maybe someone can explain it to me.
Yeah, I am frustrated about my memory, but avoiding the tough conversation I need to have about something big I/we need to decide. Indecision is another curse for another day. If I remember.
I have wondered to myself a lot over the past year why I can’t just pull myself together and go back to work. I have wanted to go back to work because my family needs the money. Yet, every time I think of it, I feel overwhelmed.
I try to play it through my mind to see if I can do it, and I am besieged by little voices saying we can’t do it. Crying voices. Scared voices. Sad voices. Frustrated voices. They all say no.
About two weeks ago, I found myself sad and replaying the difficult end to a friendship about 2 years ago. So many parts of me want to fix this relationship, but there isn’t really a way to do that.
You see, my spouse told an untrue story to this ex-friend that still remains unclear to me. The vague understanding of this story is that my spouse lost her shizzle because I was depressed and suicidal on and off, and basically not functioning in the world. This lack of functioning was the result of some major traumas I had just been through.
Somehow, I am to blame for “triggering” my spouse to go off the deep end because of my depression and lack of activity in the world.
In her “triggered state” she proceeded to have a restraining order put on me, try to take my kids from me, turn my church against me, and lose several friends.
All of these people chose not to look at the person they had known for years, but to go off my spouse’s triggered feelings that I was somehow a vague danger to the family.
She will admit that I never did a single thing to deserve this characterization. Never threatened anyone. Never, ever physically or emotionally violent. The opposite. I was withdrawn, and for that, I got a restraining order put on me and was removed from my own home.
Some find the story hard to believe, but it is not. Even the sheriffs who removed me from my own home said she never specifically said I did or threatened to do anything. In my state, the court system just believes a woman when she comes in and asks for a restraining order. They leave it to a judge to sift through the facts 10 days after the restraining order.
I never had my day in court. My spouse caved about 8 days into it. She removed the restraining order and let me see my kids. It was all a “big mistake” according to her.
She went briefly into a psych hospitalthe next week. I suppose this was her attempt at penance for her sins against me.
In the meantime, when my friends and ministers found out I had dissociative identity disorder, they assumed I was crazy and a danger to my children. Even though they had never experienced any crazy or unstable behavior from me, they jumped to these conclusions and have stuck with them.
Though my family is back together (I decided to do what I thought was best for my kids), and it is a few years later, the church and my friends still hold the same opinion of me that I am crazy and dangerous.
I have been trying to move on from this place, but feel stuck in quicksand. I can’t even do myself justice by saying how incredibly hurtful this experience has been, and continues to be. Words fail me.
I wish I could just remove myself from a world where I am constantly reminded of how other people believe I am some form of evil (que the beliefs from my childhood about myself rooted from severe child abuse).
It leaves me paralyzed.
Unable to function unless in a dissociated, nonproductive state each day. My days disappear into nothingness. My main focus is to make sure my kids are ok each and every day. That’s it. No other living going on.
I have tried to fix what has happened. Honestly, I have come to learn it is not fixable. I don’t forgive my spouse even though I live with her still. I survive by dissociating it from my awareness as much as possible. I do this because my children love her, and they want us to stay together as a family.
Everyone has to choose their path when faced with this kind of stuff. Some people choose to leave and make that work, but I looked at my choices several times and I keep deciding to stay for my children. I don’t want them to become victims to a war they have no part.
I came to realize this morning how my spouse’s actions have contributed to my lack of confidence in being able to go back to work. The trauma I have been a victim to over the past few years has left me terrified of the world. It is a scary place.
I used to be a trauma victim who just needed to be reminded that she is no longer a child. That her world is safe now. But the evidence tells me it is still unsafe, and will always be unsafe.
I try not to bring this subject up with my spouse because it sets her off into an angry, unstable rage. Her position is that I should be over it by now. She has done all she can do to make it up to me. I just need to forget it.
So, I live my days completely dissociated and forgetful of my reality.
I am present for my kids, but other than that, I barely exist. I don’t even care, as this seems like the best path for me given the choices.
I am rambling searching for some clarity.
The answer is my heart is wounded. The wound is not healing. It bleeds a little each day. I try to wipe up that blood to spare others from seeing my life.
As I often remind my children, life is not always fair. A lesson I am well acquainted with.
Don’t fear me. Don’t feel sorry for me. Don’t anything me.