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The darkness of Halloween

It’s strange. Every year, I forget how much I hate Halloween until I start experiencing a cascade of shitty stuff until it finally hits me that it is Halloween month, and that never goes well for me.

Despite having inflatable Halloween blow ups in my front yard beginning October 1st (my spouse does this for our kids), I sort of dissociate that it is Halloween and that I don’t like Halloween and that it is usually a dark time for me. It takes me until about the week before Halloween to realize the darkness of Halloween is here.

Even with the constant reminder of Halloween staring me in the face, it takes imaginary messages from the devil penetrating me to understand the chaos and fear going on in my system this time of year.

I know many parts absolutely believe in these messages from the devil, but I want to say I do not, without being mean about their beliefs.

I don’t have the answer as to why parts of me feel with certainty the devil is sending messages to them through an inanimate object in my therapist’s office that looks like the face of the devil to them.

They are terrified. I just see a piece of metal that kind of looks like a scary face, but they see and feel the devil.

I try to focus on living a normal life, and fight to keep from being consumed with ideas that the devil is coming for us.

I hate the people who have scrambled my brain, body, and soul like this.

Instead of enjoying the candy and Halloween costumes of my kids, I focus on just getting through alive.

I don’t even know what all these scary feeling are about. I don’t know that I will ever know.

My brain still protects me from the madness of my childhood.

No matter how sane I try to create my life, madness will always be with me, as I am madness.

Abused again: Trying not to give up on myself

I woke today with a busy schedule ahead of me. I have been dealing with a lot lately, particularly a very chronically sick child. It was also the day I was going to slip in taking care of myself by getting an x-ray of my hip that I injured 2 months ago and have been dealing with chronic pain ever since.

I wasn’t seeing my normal orthopedic doctor because I needed to get in quickly as I don’t have many self care openings in my schedule these days. In retrospect, I should have caught the red flag of this particular doctor having multiple openings for a next day appointment at one of the top orthopedic practices in town.

Nope. I jumped out of bed to get to the appointment early in the hopes they would take me early so I wouldn’t miss my therapy appointment afterward.

Of course, I sat in the waiting room past my appointment time before the front desk even called me up to fill out additional paperwork. So much for arriving 20 minutes early.

You know those doctors always have more important schedules than the people, so let’s make sure that is reinforced.

As I am finally walking back to meet the doctor, who incidentally wasn’t seeing any patients but me, I noticed in the paperwork they handed me to give the doctor that it has all the prescriptions listed that I have filled at my local drug store. On it, a long list of many types of psychiatric medications.

Great. I am going to get labeled a psych patient and treated poorly, as I have been through that scenario more than a few times.

The doctor pops in and spends 95% of the appointment time talking about himself, his health, the death of his brother, his age, how he doesn’t suntan anymore, what he watched on tv last night, his experience with his last colonoscopy, the cost of medications he takes, and how he treats his his rosacea.

I am feeling really grounded, but taken aback by this strange doctor showing no interest in me, and the clock ticking in my head for my next appointment.

I do my best several times to bring up the pain I am feeling on my side.

Finally, the doctor comes toward me to examine me. He starts touching me and says over and over as he moves his hands around my body “does this hurt?” When he found where it hurt he pushed in really hard and I almost jumped off the table. He says he knew that was where the pain was coming from. It was high up on my left side.

I continue to feel grounded but focused on trying to accurately answer this man’s questions about my pain as he touches me. I am so focused on trying to accurately answer him I don’t realize he is now touching me in my vaginal area and talking about bones in the pelvic area—that have nothing to do with why I am there.

I hear a couple of voices in my head calling me stupid because I don’t realize this man is touching my vaginal area for no reason and talking about how my pelvis bones touch each other.

In a slowed reaction, I realize the voices are right and this man is touching me inappropriately. And I do nothing about it.

I freeze.

I don’t stop him or tell him to stop.

It’s as if it is not happening to me, but I can hear this man’s words and feel his touch that it is happening.

Fortunately, the man seemed spooked for some reason and jumped up to go get an anatomical dummy to show me the bones in the pelvic area, which again had nothing to do with why I was there.

I couldn’t hear him so well any more as my internal world was starting to come undone.

I knew I had to get to my car before I acknowledged to myself what had just happened, so as soon as he asked me if I had any other issues I wanted to discuss, I said “nope” and raced out of there.

I tried my best to drive to my therapist’s office without coming completely undone. I made it there and then felt dead.

I let it happen again. My therapist probably doesn’t even believe me. How can these things keep happening to me?

I lost hours of time in my therapist’s parking lot as I switched between parts trying to process what had happened. I fought tooth and nail to not let other parts cut open my throat. The rage inside me is at its worst when this idea is present.

I am extremely angry at myself this happened to me today as I was just speaking about how this happened to me with another doctor some years ago, and I thought I had grown so it wouldn’t happen again.

My therapist asked me if I wanted to file a complaint. I didn’t. I know full well that my list of psych meds alone discredits anything I might have to say happened to me, which is probably why he targeted me to begin with.

I told 3 people today this happened to me. That is progress, but still I am awash in confusion how I keep letting this happen to me. Where are those strong parts of me when this happens?

Will it ever stop?

Doing my best to manage my C-PTSD and DID while navigating a sick child

My son has been diagnosed with a serious neurological disorder called PANS, which explains the symptoms we have been seeing in him for years. Please take a little bit of your time and watch the documentary “My Kid is Not Crazy” on Vemio to learn more about PANS.

I have found that his diagnosis and the related experiences I have had since then has kept me in a constant fight-or-flight mode that I can’t pull out of for longer than an hour, and this has been going on for weeks. I’m exhausted.

My own complex PTSD from my severe childhood abuse has been activated in more ways than I even comprehend at the moment. I just know I am functioning in a state of chaos and fight/flight.

My Dissociative Identity Disorder is not helping as I have accidentally injured myself these past couple of weeks because I am so distracted by the conversations happening in my head.

I have done my best to hold my DID in check, but as I am nearing exhaustion, it is getting more difficult. Arguments between parts. Large chunks of time missing. New parts surfacing who are under significant distress. Parts worried for us, worried for my son.

And then there is this need for me to save my son. Not uncommon for any parent facing this situation, but feeling really out of control due to my trauma background. I really cannot stop myself from constantly researching, talking to professionals, going to appointments, and talking to other parents who are in similar crisis.

The ironic thing is that parents of children with PANS/PANDAS typically develop PTSD as a result of going through this nightmare with our kids. This I recognize in my fellow PANS/PANDAS parents, and do my best to help.

I know I need to find the balance between taking care of myself and taking care of my son, but I feel so triggered by the entire situation I really feel unable to stop.

As a child no one made any attempt to help me, but by God I will do everything possible to help my son. This logic is driving my being.

The similarities between my trauma and this situation are endless, but my mind is not clear enough to really dive into that now.

Though I know I am doing so much good for my son by searching for answers, I also recognize as a parent this is the first time I have felt my diagnoses significantly impact my ability to maintain stability and feel solid as a parent. Though my kids don’t notice, I do, and it worries me as I can’t stop myself from fight/flight mode and all that entails.

Drifting

Drifting toward health.

Drifting toward death.

It doesn’t seem like this should be so confusing, but it is.

Some days ago, a little girl, maybe 4 or 5, stood in my childhood bedroom watching in freeze mind as my mother threw out her toys into the big green dumpster my mother had wheeled into the room.

This child did not understand, as any reasonable person wouldn’t, why her mother insisted on stripping every bit of humanity out of her.

She caused no trouble in the house. She did everything her mother or brothers told her to do. She had sex with whoever wanted it. She tried not to breathe as she was afraid it would upset them. Her existence was so minimal.

Still, with trying to do everything right, her mother hated her with such sadistic pleasure.

Her mother had made sure to strip her of everything.

Decency. Humanity. Love. Free thought. All gone.

She was forced to live in a room that only had a bed and a piece of office furniture. There could be no signs of a human child living there. Only nothingness, so she would always know she was nothing and nobody.

The little girl is stuck in this place, long past trying to understand her life.

Confusion, obedience, and an ounce of pain belonged to her.

I watched her for days. She was stuck there. I was stuck watching her. I had no explanation to give her. Yes, it was all vaguely familiar to me, but I wanted to keep it “not me” because that looks like such a painful, awful existence. Who would want that?

Feelings of suicide had been circling us as a system. I was not in as much control as I usually am, partly because watching this little girl made me want to die.

So I let the others inside me deprive the body of oxygen until I reached an altered state of consciousness. Here, I could go to the little girl in the bedroom.

Like I would do with my own wounded outside children, I reached down and picked her up and held her. She had never been held before, but she did not resist me and gave in to trusting me and let me carry her away.

I held her tightly against me, with her legs wrapped around me, and I could feel her pain and confusion. It is stuck in my heart.

I wanted to promise her that she would never be hurt again, but I knew I couldn’t do that in this very imperfect world.

She had endured more pain and suffering than a nation of people.

She would experience it no more.

I delivered her to the angels in heaven as I knew of no other place that promises the end of suffering. I told her she would be safe there, and the angels would love her and take care of her.

After I delivered her, I gasped for breath to get some oxygen in my earthly body. I was barely there. I was barely making it out alive.

I struggle to care about the damage done to my brain, or my almost lost life. It seems unimportant in the scheme of things.

I look to my childhood bedroom everyday since then, and it is empty. She is gone. She is free from the cruelty dealt to her.

I am relieved to have set her free. And uncertain as to what this means for me.

Namaste

When my Dissociation makes me feel lost

It has been a long time since I have written anything. I have been doing some better, but struggling more than ever with feeling lost.

There are moments when I forget about my Dissociative Disorder, and then I am talking to a good friend about his son and I can’t remember his son’s name.

These moments of amnesia make me afraid to pose as normal to the world. I have thought about trying to go back to work, then I feel this inner flooding of anxiety.

I ask inside to my other parts what we are so afraid of about going back to work. Apparently, they just don’t think we can do it.

It is possibly true. I know I may seem like I am ok sometimes, but then I look back on my day and realize I only accomplished 1-2 things. On an intense day, I might have struggled to get a 3rd thing done.

I am not sure why I can’t get more done in a day, except for this damn amnesia and feeling confused and lost so much.

I have been trying my best to be present for my children as they both have issues going on and need me. Some moments I am good about that, other days I feel inner parts distance themselves from the children and contemplate suicide.

The therapy is a struggle lately. My child parts are so hurt and don’t understand why we are seeing the T less often. Our insurance would rather pay for hospitalization than outpatient care. Brilliant business people.

The therapist wants us to trust her, but the younger parts feel like she doesn’t care about us. The T struggles with this because she says she doesn’t understand what she can do to show parts she cares about them.

Then, the parts reveal that because she is not abusing us, she doesn’t care about us.

She says she is never going to abuse us, so she is never going to care about us?

Then there are older parts who say we should just stop going to therapy. This doesn’t go far because the Little’s surface and put us in a Little hurt state of mind.

Anyway, like I said, I am feeling lost. Don’t know what to do about much. Contemplating giving up my career and going to work for a low paying job or no job at all. Can’t seem to make any decision about that or anything else.

Lost. That is me.

How severe neglect and abuse affect relationships

My parents did not love me. They did not hold me or care for me in even the most basic ways as a baby/toddler/child/adult.

As an adult, I know how this has affected me. I struggle to connect lovingly with other people in relationships. I don’t like to be touched. I struggle to feel anything other than numb.

There are people in my life who say they love me and care for me deeply; yet, I feel empty and nothingness and awkward to their loving gestures.

Interestingly, for me, I can feel love when it comes to my children. I genuinely love them, and I feel their love for me. I am not sure why it is so different when it comes to them.

When people other than my children say they love me, I cringe as if a dagger just went through me. I know I am supposed to give a loving reply back, but I can’t, and retreat into a state of internal awkwardness.

In case you are wondering, I am married. I don’t know why my spouse puts up with my difficulties around love, touch, sex, and oftentimes being aloof.

Sometimes, the fact that I have Dissociative Identity Disorder (DID) comes in handy as there are other self states within me who do not struggle with the attachment damage from my childhood.

I don’t always control which part of me is out, and thus I fluctuate in the level of connectedness I have with others. This can be confusing to people because they don’t know about the DID (or don’t understand in my spouse’s case).

There are times when I am home with the family and I find myself very disconnected from them. My spouse will ask me what is wrong, and there isn’t anything wrong, but a self state that has more severe problems with attachment is usually present.

Other self states may go overboard with love and intimacy with other people. These self states tend to like to drink and be social, which of course is not the best combination.

My adult self-states are mostly similar enough that even the people who know I have DID have trouble distinguishing between them. But there are subtle differences if one is paying attention. However, very few people know about the DID.

My therapist seems to think my attachment problems can be healed through therapy and working through the pain of my childhood. I disagree. Though I have much more insight into my attachment problems, it doesn’t seem to do anything to help change that this is the way I am.

She would say I am feeling hopeless again, as if depression or something is causing me to come to this conclusion. I don’t feel particularly depressed. My mind is actually fairly clear, and I see my thoughts and feelings about my attachment problems as a form of acceptance of my reality.

I don’t mean to be a Debby Downer, but I do think it is better to accept reality and try to live life as it is rather than chasing a mental health that will never come for those of us who have been severely neglected as children.

That is not to say we can’t have a different version of mental health based on acceptance, instead of forever chasing a higher level of mental health and living our lives in the therapy room instead of the real world.

Too many of my friends and myself have spent almost our entire lives in the therapy rooms chasing an elusive mental health that will never come.

Please don’t get me wrong. I do believe in therapy, and it is necessary for many of us to survive in the world. But, I believe many of us with severe trauma backgrounds are using up our entire lives waiting for the wellness to begin. It’s just something to consider.

Yes, get therapy help, but don’t get caught in the idea that you will get “cured” and then miss out on living your life because you spent it searching for answers that don’t seem to transform into wellness.

*Disclaimer, my therapist and others do not agree with my point of view.

Wrestling with the truth that my parents repeatedly reinforced into me that I am not lovable has turned off a switch in me that should be on to experience the human condition of love and care.

This leaves me like one of those futuristic robots who can show the slightest bit of emotion, but fall short of the real human experience.

Father’s Day 2018

In years past, I celebrated this day with you. I chose to remember only the good I thought I knew about you.

This year it feels as if it is just another day. Another holiday that I don’t recognize.

If I let myself, I could get angry and hurt thinking about your role as my father.

As much good as you did for me, you failed me in so many more significant ways.

Your inability to love me, or choice to not love me, was the cruelest thing you could have done to me. What kind of father refuses to tell his daughter he loves her? As a parent myself, I can’t even begin to understand your actions and lack of love for me. No child deserves a parent who chooses not to love her.

Your decision to not protect me from all forms of child abuse cannot be understood or forgiven. No decent human being stands by an ignores his daughter’s pleas for help. I know you knew all about what was going on, and it hurts me so badly that you chose Mom and her sickness over me.

I deserved to have a father who loved me, protected me, and saw my self worth. You were not him, so this year I will not pretend to honor you on Father’s Day.

I pray that God has made you answer for the sins you perpetrated against me.

I deserved better. I know this, and you can’t take it from me.