The Debilitating Amnesia that goes with my Dissociative Identity Disorder

Confusion

I live with debilitating amnesia every day. I can’t remember what I did hours ago, and definitely lose my place in time, like not knowing what day (or year) it is, and whether I did something yesterday or it was really 3 days prior. It is a maddening aspect of my Dissociative Identity Disorder (DID) that I try to compensate for so I can function in the world and people won’t suggest I get locked away.

Since I have DID, most people believe that one with DID can’t remember because they have switched into another part and “lost time” as we like to call it in the DID world. This is not true for me. I have loads and loads of trouble remembering things that happen when I know I was present for them (not switched into another part).

Some people have theories about how my DID influences my amnesia, but at the end of the day they are just theories, and I have no idea whether they are true or not. I have had DID therapists suggest at times I have “cognitive problems” because they couldn’t make out why I have this severe amnesia and still seem to be present. The way I experience amnesia is definitely not the way it is written about in text books about DID.

Some times I feel completely lost in the world because my amnesia is so bad. It does fluctuate on how severe it is. Sometimes I can’t even remember the names of people I have known for years on one day, and then the next I have no trouble remembering names. I use Google all the time to give me clues to things I need to remember. I am betting Google didn’t realize this use of its product.

I don’t believe it is a cognitive problem because there are days when my entire brain is sharp as a tack and I can remember everything. This confuses the therapists even more.

My best friend with DID shares a similar plight. Sometimes it is funny to watch her experience the same struggle with her memory, but other times it is scary to realize how much we have to hide and develop strategies to “pass” in this world as functioning. Sometimes we both just laugh and laugh because neither of us can remember what we talked about yesterday that was so important to the both of us.

I have learned that these missing current day memories are in my brain, I just need  prompts for me to be able to retrieve them. Often times if someone starts giving me some clues, I can piece it together and voila, I can actually pull out the complete memory. If I don’t have clues, I might never be able to access it, or even know what I am looking for.

In some ways, people would consider me high functioning DID at this moment because the cracks in my mind are mostly hidden. People think I am doing ok because I am getting out bed, making all my appointments, not feeling depressed or overwhelmingly anxious, taking care of my kids, and in general, participating in life.

What lies beneath that high functioning is a stressed out system trying to maintain that appearance and not get “caught” by someone for how little I can remember. With the amnesia comes simple things like remembering to eat or go to the bathroom. The messages that should come from my body to my brain somehow get hijacked, which is why I often only end up eating one time a day.

I think because I struggle so much with my memory, I have been a strong advocate beginning this year to healing the mind/body/spirit as an overall approach to DID healing. I simply don’t believe talk therapy is enough for all the faulty wiring going on in my brain, and this is not talking bad about talk therapy or myself, but more of the truth of all the baggage that goes along with exposure to severe trauma as a child.

I did about 15 sessions of neurofeedback recently, and I believe this has helped my brain function better considerably. I am less anxious, less depressed, and feel mentally sharper. But still, I struggle with my memory every day to varying degrees.

I will continue doing therapies that are designed to help my “trauma brain,” so that I can function better. Even though this will not be the cure to my DID, it definitely makes it easier for me to function from day-to-day, and thus makes the recovery work for my DID more stable.

For some reason people don’t talk enough about the amnesia that goes along with DID. For me and many others, it is really one of the most disabling aspects of having DID. It would make for a boring Hollywood movie, I suppose. But outside of Hollywood, we should raise awareness about this crippling amnesia so that we can get clinicians and researchers working on getting a better understanding of it, and hopefully with that understanding, more therapies to address the problem.

My amnesia is one of the reasons I would like to integrate my parts. I feel like if all the parts of me were together as one, this missing or lost information wouldn’t happen. It’s just my theory, and why I am working so hard to heal my parts.

 

 

 

 

5 thoughts on “The Debilitating Amnesia that goes with my Dissociative Identity Disorder

  1. Thank you for sharing this. My amnesia sounds like it is much like yours. I can tell I am very present a lot but sometimes I still couldn’t tell you the day or even what kind of car I am driving at the moment. It is so frustrating and very embarrassing. My car broke down a few weeks ago and I (in a panic) walked a mile away from the car before I called a tow truck. Of course when they asked what kind of car I was driving I knew it was a grey van but didn’t know make or model. And, so, as I often do, I guessed….and guessed wrong. The tow guy shows up and says “huh, they wrote down the wrong make and model of the car”. Me: no, I gave them the wrong one. Guy: Oh, did you just buy this one then? Me: No, I just couldn’t remember what it was. Ugh…..

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  2. i have that kind of thing too. days prior, i don’t recall what i did. i can remember going to the store but not what day. sometimes i get confused thinking i did something a few days ago when it was a longer period of time. i cannot keep a consistent sense of time in general. i can keep appointments and know that i work , but i cannot keep track of what day it is without looking several times throughout the day and trying to repeat it so i remember. recently, i lost like two months. i have bits and pieces of it and can remember some things, but overall, not much. and now all of a sudden, it’s the fall.

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      1. yeah. i get confused too cuz i feel like i am living life and ‘here’ but at the same time am not…at least not fully. it can take a bit to realize time is going fast and i’ve done things in that time..just is like being in a dream…though i can remember details of dreams more than any full day in my life.

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